CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 451 - 475 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12348 Respiratory high frequency chest wall oscillation system vest type

Type of vest used

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02014 Medication prior or concomitant name

Name of the prior/concomitant agent or drug administered

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12493 Imaging brainstem abnormality type

The type of abnormality in the brainstem on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C14554 EEG posterior dominant rhythm frequency

The frequency of posterior dominant rhythm during relaxed wakefulness (Hz) during electroencephalography (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

Supplemental Social Status Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12738 Needle electromyography interference pattern analysis result

The result of the interference pattern analysis measure during needle electromyography

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10675 Country origin maternal name

Mother's country or countries of origin

Supplemental Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19806 Medical history endocrine diabetes indicator

Indicator of diabetes

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12525 Biopsy and autopsy fiber abnormality type

Fiber type abnormalities on a muscle biopsy

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C20326 Biopsy autopsy excessive glycogen status

The status related to glycogen storage pathology which involves excess PAS+ material that is easily identifiable on light microscopy and is evident on other stains including H and E. Mild glycogen storage pathology is difficult to determine at the light microscopic level and may only be evident on PAS stain or electron microscopy

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18837 Respiratory manual cough assist use other text

The free-text field related to 'Respiratory manual cough assist use frequency' specifying other text. Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19765 Medical history auditory deafness diagnosis indicator

Indicator of any history of deafness

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12696 Electrophysiology motor nerve segment name

The name of the segment used for the motor nerve conduction study

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12501 Imaging internal capsule type indicator

The condition of the internal capsule

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17429 EEG abnormal indicator

The yes/no indicator for abnormal assessment of electroencephalography (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12746 Electrophysiology fiber density quantitative result value

Fiber density measured for a particular muscle and side

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12293 Tissue specimen intraepidermal nerve fiber density value

Value of the intraepidermal nerve fiber density in the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C08241 Imaging field of view axis 1 measurement

Measurement of axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12705 Electrophysiology sensory nerve velocity measurement

The signal transmission speed measured during the sensory nerve conduction study

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19814 Medical history musculoskeletal broken bones indicator

Indicator of broken bones

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17902 Elevated creatine kinase value

The elevated creatine kinase value

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17430 EEG seizures indicator

The yes/no indicator for electroencephalography (EEG) seizures

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 451 - 475 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.