CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 376 - 400 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19847 Medical history bilevel positive airway pressure ventilator since last visit indicator

Indicator of bilevel positive airway pressure or ventilator adjusted since last visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19876 Medical history behavior issue since last visit indicator

Indicator of behavioral issues since last visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19765 Medical history auditory deafness diagnosis indicator

Indicator of any history of deafness

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19766 Medical history auditory deafness diagnosis date

Date deafness first detected

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19780 Medical history asthma pulmonary medication taken indicator

Indicator of steroid pills or liquid medication taken for asthma

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19781 Medical history asthma pulmonary inhalers use indicator

Indicator of steroid inhalers used for asthma

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19782 Medical history asthma pulmonary inhalers use frequency

Frequency of use of steroid inhalers used for asthma

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19779 Medical history asthma pulmonary assessment indicator

Indicator of history of asthma

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19852 Medical history aspiration choking since last visit indicator

Indicator of aspiration or choking since last study visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19870 Medical history arrhythmias since last visit indicator

Indicator of arrhythmias since last study visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19811 Medical history abdominal liver problem indicator

Indicator of history of liver problem

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19812 Medical history abdominal liver problem enzyme elevation indicator

Indicator of elevation in liver enzyme

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19810 Medical history abdominal kidney problem indicator

Indicator of history of kidney problem

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19808 Medical history abdominal difficulty swallowing indicator

Indicator of history of difficulty swallowing

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19807 Medical history abdominal difficulty eating indicator

Indicator of history of difficulty eating

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19809 Medical history abdominal constipation indicator

Indicator of history of constipation

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C11062 Maternal delivery age value

Mother's age at the time she gave birth to the participant/subject

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

 Supplemental Social Status False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

 Supplemental Social Status False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 376 - 400 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.