CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12422 Pulmonary gas exchange end tidal transcutaneous average carbon dioxide value

The average value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12722 Electrophysiology repetitive nerve high frequency

Value, in Hz, of the specific frequency used for the high frequency stimulation activation technique, if applicable, in the repetitive nerve study being recorded

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12405 Respiratory other therapies description text

Text describing other relevant therapies for the participant's/subject's respiration system

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19988 Immunohistochemistry CD68 percentage value

Percent value of C68

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02003 Medication prior or concomitant ongoing indicator

Indicator of or description that the prior/concomitant medication usage is ongoing

 Supplemental Prior and Concomitant Medications False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19948 Biopsy and autopsy myotentinous insertion sites status

The status of myotentinous insertion sites

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19860 Medical history strength change since last visit status

Indicator of change in strength since last study visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17969 Electrophysiology sensory nerve segment name

The name of the segment used in sensory nerve conduction studies

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12730 Needle electromyography motor unit action potential amplitude measurement

The amplitude value of the motor unit action potential (MUAP) measure during needle electromyography

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18840 Respiratory lung volume recruitment use other text

The free-text field related to 'Respiratory lung volume recruitment use frequency' specifying other text. Frequency of lung volume recruitment use

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19956 Immunohistochemistry spectrin status

The status of spectrin in immunohistochemistry

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19868 Medical history congenital muscular dystrophy Limb-Girdle muscular dystrophy genetic confirmation spectrum disorder since last visit indicator

Indicator of genetic confirmation of CMD to LGMD spectrum since last visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C14554 EEG posterior dominant rhythm frequency

The frequency of posterior dominant rhythm during relaxed wakefulness (Hz) during electroencephalography (EEG)

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19683 Imaging ultrasound muscle pattern type

The type of muscle pattern displayed on the ultrasound

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19916 Biopsy and autopsy ragged red fibers status

Ragged red fibers status in biopsy

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19829 Behavioral issues indicator

Indicator of behavioral issues

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12738 Needle electromyography interference pattern analysis result

The result of the interference pattern analysis measure during needle electromyography

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18848 Respiratory support positive pressure device delivery method other text

The free-text field related to 'Respiratory support positive pressure device delivery method type' specifying other text. Type of non-invasive, positive pressure delivery method supported by the device

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19964 Immunohistochemistry alpha sarcoglycan status

The status of Alpha sarcoglycan in immunohistochemistry

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19876 Medical history behavior issue since last visit indicator

Indicator of behavioral issues since last visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17429 EEG abnormal indicator

The yes/no indicator for abnormal assessment of electroencephalography (EEG)

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19924 Biopsy and autopsy core like lesions status

Core-like lesions status in biopsy

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 326 - 350 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.