CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

 Supplemental Demographics False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12372 Respiratory support device model name

Name of the model of the respiratory support or assisted ventilation device

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12332 Respiratory manual percussion use frequency

Frequency of use of manual percussion therapy

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12527 Biopsy and autopsy type 2 predominance fiber percentage value

Percentage of Type 2 predominance fiber present

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19788 Medical history pulmonary ventilator use frequency

Frequency of use of ventilator

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12226 Specimen source type

Type of specimen collection source

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12698 Electrophysiology motor nerve segment length measurement

The nerve segment length measured during the motor nerve conduction study

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12382 Respiratory tracheostomy tube brand style name

Name of the brand/style of the invasive tracheostomy device used by the participant/subject

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12503 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity indicator

Indicator of whether there is grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12340 Respiratory lung volume recruitment daily frequency

Frequency of daily use of the lung volume recruitment

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12295 Laboratory pathology normal range age match indicator

Indicator of whether the pathology laboratory's normal range of intraepidermal nerve fiber density is age-matched to the patient from whom the tissue specimen was taken

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17904 Biopsy and autopsy pathological inclusions text

Text describing pathological inclusions (if any)

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19796 Medical history cardiovascular enlarged heart diagnosis method type

Indicator of enlarged heart detection method

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19972 Immunohistochemistry integrin alpha 7 status

The status of Integrin a7 in immunohistochemistry

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19884 Motor function history maintain indicator

Indicator of motor function history maintained

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12940 Birth head circumference value

Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19932 Biopsy and autopsy ring fibers status

Ring fibers status in biopsy/autopsy

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19844 Medical history wheezing since last visit indicator

Indicator of wheezing since last visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12757 Electrophysiology blood pressure response Valsalva phase II late result

The blood pressure response to valsalva maneuver during Phase II late

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12414 Pulmonary blood gas pH value

The numeric value of the blood gas pH measurement

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12714 Electrophysiology blink reflex test contralateral R2 latency value

Duration of contralateral R2 latency in the blink reflex test

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 301 - 325 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.