CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14116 Learning disability or attention deficit diagnosis indicator

Whether the participant/subject was ever given formal diagnosis of any learning disability or diagnosed with ADD/ADHD (Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder)

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17438 EEG sampling rate

Electroencephalography (EEG) sampling rate, commonly recorded in Hz (250-2000 Hz)

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12351 Respiratory high frequency chest wall oscillation system session time

Time of high frequency chest wall oscillation system use per session

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12474 Imaging field of view measurement description text

The free-text field to generally describe field of view (FOV) or anatomical positioning

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10864 Dynamometry hand held muscle test performed indicator

Indicator of whether the hand held dynamometry testing was done

Supplemental Hand Held Dynamometry Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Grip Strength Fatigue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19896 Elevated erythrocyte sedimentation rate indicator

Indicator of whether participant/subject experienced elevated erythrocyte sedimentation rate

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19808 Medical history abdominal difficulty swallowing indicator

Indicator of history of difficulty swallowing

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12280 Specimen immunohistochemical stain result

Result of immunohistochemical stain performed

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12251 Biopsy and autopsy atrophy or hypotrophy type

Atrophy/ hypertrophy type

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19767 Medical history pulmonary difficulty diagnosis indicator

Indicator of difficulty breathing

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18813 Imaging lesion found other text

The free-text field related to 'Imaging lesion found type' specifying other text. Type of lesions found in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12359 Respiratory other airway clearance method name

Name of airway clearance method used by the participant/subject other than mechanical in-exsufflator, manual cough assist, manual percussion, postural drainage, lung volume recruitment, and intrapulmonary percussive ventilation

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12482 Imaging cortex lissencephaly (LIS type 1) thickness measurement

The measurement of cortex thickness, in , of the lissencephaly (LIS type 1) site

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12319 Respiratory device type

Type of airway clearance or secretion mobilization device(s) used by the participant/subject

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

Supplemental Grip Strength Fatigue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19904 Symptom disease lab data known disease other text

Text of other symptoms, signs, known diseases, and lab data

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19816 Medical history musculoskeletal total broken bones type

Type of bones broken

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18828 Histochemical stains used other text

The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12262 Biopsy and autopsy microorganisms name

Name of microorganisms identified in biopsy or autopsy specimen

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00226 Health insurance type

Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19775 Medical history sleep pulmonary assessment indicator

Indicator of sleep study completed

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19991 Immunohistochemistry protein aggregate myopath panel stain type

Type of protein aggregate myopathy panel used

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 251 - 275 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.