CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1905-C19742	C19742	Goniometry finger measurement	Measurement in degrees of the passive range of motion for fingers	Supplemental	Goniometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19956	C19956	Immunohistochemistry spectrin status	The status of spectrin in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19852	C19852	Medical history aspiration choking since last visit indicator	Indicator of aspiration or choking since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19916	C19916	Biopsy and autopsy ragged red fibers status	Ragged red fibers status in biopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19773	C19773	Medical history pulmonary function test assessment date	Date of pulmonary function test completed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19823	C19823	Medical history musculoskeletal joint dislocation trauma type	Type of joint dislocation trauma	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C18657	C18657	Imaging diffusion sixth b value	Value, in square millimeters per second, of the sixth b-value used in diffusion acquisition	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19781	C19781	Medical history asthma pulmonary inhalers use indicator	Indicator of steroid inhalers used for asthma	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1910-C58651	C58651	Tissue specimen section count unknown indicator	Indicator that the count of tissue speciments is unknown	Supplemental-Highly Recommended	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19894	C19894	Symptom presentation central nervous system disease text	Central nervous system participant/ subject shows at presentation	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19789	C19789	Medical history pulmonary cough assist status	Status of cough assist	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19902	C19902	Imaging electromyography findings text	Text of imaging findings of patient	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19797	C19797	Medical history endocrine early puberty indicator	Indicator of history of early puberty	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19910	C19910	Biopsy and autopsy trichome red inclusions status	Red inclusions on trichome status	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18611	C18611	Imaging field of view axis 2 measurement	Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19806	C19806	Medical history endocrine diabetes indicator	Indicator of diabetes	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19995	C19995	Immunohistochemistry ubiquitin aggregate level status	Level of ubiquitin aggregate	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19765	C19765	Medical history auditory deafness diagnosis indicator	Indicator of any history of deafness	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19814	C19814	Medical history musculoskeletal broken bones indicator	Indicator of broken bones	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19965	C19965	Immunohistochemistry beta sarcoglycan status	The status of Beta sarcoglycan in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19861	C19861	Medical history roll in bed unassisted since last visit status	Status of assistance needed to roll over in bed since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19925	C19925	Biopsy and autopsy core like lesions estimated percentage value	Core-like lesions estimated percentage value	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19973	C19973	Immunohistochemistry neuronal nitric oxide synthase status	The status of neuronal nitric oxide synthase in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19869	C19869	Medical history gene mutation text	Text specifying which gene has been mutated to confirm CMD to LGMD spectrum	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.