CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 1051

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1908-C19893	C19893	Symptom presentation cardiac disease text	Known cardiac disease participant/ subject shows at presentation	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19805	C19805	Medical history endocrine osteoporosis indicator	Indicator of history of osteoporosis	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19659	C19659	Family history side type	Free-text field to indicate the side of the family in which the participant/subject has a family history of the listed conditions	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19764	C19764	Medical history retinal detachment diagnosis indicator	Indicator of history of retinal detachment	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19901	C19901	Imaging electromyography findings status	Status of the electromyography (EMG) findings of patient	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19813	C19813	Medical history genito-urinary urinary tract infections indicator	Indicator of history of urinary tract infections	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19772	C19772	Medical history pulmonary function test assessment indicator	Indicator of pulmonary function tests completed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19988	C19988	Immunohistochemistry CD68 percentage value	Percent value of C68	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19948	C19948	Biopsy and autopsy myotentinous insertion sites status	The status of myotentinous insertion sites	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19860	C19860	Medical history strength change since last visit status	Indicator of change in strength since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19956	C19956	Immunohistochemistry spectrin status	The status of spectrin in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19868	C19868	Medical history congenital muscular dystrophy Limb-Girdle muscular dystrophy genetic confirmation spectrum disorder since last visit indicator	Indicator of genetic confirmation of CMD to LGMD spectrum since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1868-C19683	C19683	Imaging ultrasound muscle pattern type	The type of muscle pattern displayed on the ultrasound	Supplemental	Muscle Imaging	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19916	C19916	Biopsy and autopsy ragged red fibers status	Ragged red fibers status in biopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19829	C19829	Behavioral issues indicator	Indicator of behavioral issues	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19964	C19964	Immunohistochemistry alpha sarcoglycan status	The status of Alpha sarcoglycan in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19876	C19876	Medical history behavior issue since last visit indicator	Indicator of behavioral issues since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19924	C19924	Biopsy and autopsy core like lesions status	Core-like lesions status in biopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19837	C19837	Pain position indicator	Indicator of pain within a certain position of the body	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19972	C19972	Immunohistochemistry integrin alpha 7 status	The status of Integrin a7 in immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19884	C19884	Motor function history maintain indicator	Indicator of motor function history maintained	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19932	C19932	Biopsy and autopsy ring fibers status	Ring fibers status in biopsy/autopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19844	C19844	Medical history wheezing since last visit indicator	Indicator of wheezing since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C19980	C19980	Immunohistochemistry CD8 percentage value	Percent value of CD8	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1905-C19742	C19742	Goniometry finger measurement	Measurement in degrees of the passive range of motion for fingers	Supplemental	Goniometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.