CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1051
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19968 Immunohistochemistry dysferlin status

The status of dysferlin in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19880 Medical history upper respiratory infection frequency

Frequency of upper respiratory infection

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19928 Biopsy and autopsy moth eaten fibers status

Moth-eaten fibers status in biopsy/autopsy

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19840 Medical history medication change since last visit indicator

Indicator of medication changes since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19976 Immunohistochemistry CD3 percentage value

Percent value of CD3

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Goniometry Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19936 Biopsy and autopsy lobulated fibers status

Lobulated fibers status in biopsy/autopsy

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19848 Medical History non-invasive ventilation setting type

Type of NIV settings made

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19984 Immunohistochemistry CD138 percentage value

Percent value of C138

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19746 Goniometry knee measurement

Measurement in degrees of the passive range of motion for knee

Supplemental Goniometry Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Surgical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19944 Biopsy and autopsy intramuscular nerve branche type

Type of intramuscular nerve branches

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19856 Medical history gastrostomy tube since last visit indicator

Indicator of Gtube placed since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19992 Immunohistochemistry desmin aggregate level status

Level of desmin aggregate

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19952 Immunohistochemistry dystrophin rod domain status

The status of dystrophin rod domain (DYS1) in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18610 Imaging in plane resolution axis 2 measurement

Axis 2 of in-plane spatial resolution used in imaging acquisition

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19864 Medical history physical therapy change since last visit indicator

Indicaor of change in physical therapy since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19679 Imaging muscle MRI ultrasound performed type

Type of muscle magnetic resonance imaging or ultrasound performed

Supplemental Muscle Imaging Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19912 Biopsy and autopsy rimmed vacuoles status

Rimmed vacuoles status in tissue

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19960 Immunohistochemistry laminin alpha2 merosin 300 status

The status of Laminin a2/Merosin (300 kDa) in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19872 Medical history urinary tract infection since last visit indicator

Indicator of UTI since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19793 Medical history cardiovascular heart arrhythmia diagnosis date

Date of first detection of heart arrhythmia

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19890 Symptom presentation weakness distribution other text

The free-text field to describe other symptoms participant/ subject shows at presentation

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19802 Medical history endocrine Vitamin D deficiency indicator

Indicator of history of vitamin D deficency

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19655 Family history CMD LGMD disorder indicator

Indicator for whether the participant/subject has a family history of CMD to LGMD spectrum disorder

Supplemental Family History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 126 - 150 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.