CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00008 Age value

Value for participant's age, calculated as elapsed time since the birth of the participant

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C08238 Imaging repetition gap duration

Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C08241 Imaging field of view axis 1 measurement

Measurement of axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10744 Echocardiogram left ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10932 Imaging lesion found indicator

Indicator of whether lesions are found in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12865 Echocardiogram left atrial volume measurement

Measurement of the left atrial volume obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12846 Cardiac MRI left ventricle posterior wall thickness measurement

Measurement of the thickness of the posterior wall of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12873 Echocardiogram tricuspid valve stenosis degree status

Status of the degree of tricuspid valve stenosis as assessed by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12889 Echocardiogram right ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10731 Echocardiogram right atrial enlargement status

Status of right atrial enlargement on the echocardiogram

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10576 Imaging in plane resolution axis 1 measurement

Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10576 Imaging in plane resolution axis 1 measurement

Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12896 Echocardiogram left ventricle end diastolic volume measurement

Measurement of imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10685 Imaging slice orientation type

Type of slice orientation used in imaging acquisition

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C11098 Pulmonary function test date and time

Date (and time, if applicable and known) the pulmonary function test was performed

Supplemental-Highly Recommended Pulmonary Function Testing Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18877 Echocardiogram right ventricle systolic pressure estimation type other text

The free-text field related to 'Echocardiogram systolic pressure estimation type' specifying other text. Type of technique used to estimate the right ventricular systolic pressure

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10745 Echocardiogram early mitral inflow velocity measurement

Measurement of the diastolic pressure difference between the left ventricle and left atrium (E) obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12839 Cardiac MRI ventricle end diastolic dimension measurement

Measurement of the diameter across the selected ventricle at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12866 Echocardiogram left atrial area measurement

Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12874 Echocardiogram pulmonic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17929 Cardiac MRI overall impression text

Free-text field describing the overall impression of the cardiac magnetic resonance imaging (MRI) being reported

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12890 Echocardiogram left ventricle function status

Status of left ventricle function on the echocardiogram

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12897 Echocardiogram right ventricle end diastolic volume measurement

Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12913 Echocardiogram study quality type

Type of quality of the echocardiogram study

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 976 - 1000 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.