CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 351 - 375 of 1051
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12232 Laboratory director name

Name of laboratory director where assessment was performed

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12884 Echocardiogram spectral doppler myocardial performance index number

Myocardial performance index measured with spectral doppler reflects both left ventricular systolic and diastolic function

 Exploratory Echocardiogram False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12518 Endomysial fibrosis severity status

Severity of the Endomysial fibrosis muscle diagnostic abnormalities

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12417 Pulmonary blood gas bicarbonate value

The numeric value of the bicarbonate (HCO3) level in the blood

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10591 Imaging phase encode direction text

Text description of the phase encode direction used in imaging technique acquisition

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12400 Respiratory oxygen administration method name

Name of method of administration of supplemental oxygen used

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12756 Electrophysiology blood pressure response Valsalva phase II early result

The blood pressure response to valsalva maneuver during Phase II early

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12188 Dual X-ray absorptiometry distal femur Z score

Dual X-ray absorptiometry (DEXA) distal femur Z score result value

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12713 Electrophysiology blink reflex test ipsilateral R2 latency value

Duration of ipsilateral R2 latency in the blink reflex test

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12288 Tissue specimen section microscopy type

Type of microscopy used to view the sections taken from the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12528 Biopsy and autopsy nemaline rods restricted to one fiber text

Nemaline rods restricted to one fiber text

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18852 Respiratory oxygen administration method other text

The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12315 Pulmonary function forced vital capacity leak indicator

Whether or not there was a leak during exhalation in any trial for forced vital capacity (FVC)

 Supplemental-Highly Recommended Pulmonary Function Testing False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10687 Imaging diffusion first b value

Value, in square millimeters per second, of the first b-value used in diffusion acquisition

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18835 Respiratory device other text

The free-text field related to 'Respiratory device type' specifying other text. Type of airway clearance or secretion mobilization device(s) used by the participant/subject

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12764 Electrophysiology tilt study blood pressure change result

Blood Pressure changes experienced from a tilt test

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12196 Dual X-ray absorptiometry right leg lean value

Right leg lean muscle mass for dual X-ray absorptiometry (DEXA)

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12721 Electrophysiology repetitive nerve activation technique type

Indicator of the activation technique used in the repetitive nerve study being recorded

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12296 Tissue specimen sweat gland innervation evaluate indicator

Indicator of whether sweat gland innervation was evaluated for the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17905 Biopsy and autopsy abnormal storage material text

Text describing biopsy or autopsy material that has been stored abnormally

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12237 Specimen overall interpretation status

Status of the overall assessment of the specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12235 Histochemical stains used type

Type of standard histochemical stains used on the tissue specimen

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18834 Ulna length measure tool other text

The free-text field related to 'Ulna length measure tool name' specifying other text. Instrument used to measure ulna length

 Supplemental-Highly Recommended Pulmonary Function Testing False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 351 - 375 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.