CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1856-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C18714	C18714	Imaging radio frequency coil channel count other text	The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18714	C18714	Imaging radio frequency coil channel count other text	The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19849	C19849	Medical history ventilator setting type	Type of Ventilator settings	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1906-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1906-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12375	C12375	Respiratory positive pressure device initiation date	Date of initiation of the non-invasive, positive pressure device	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12334	C12334	Respiratory manual percussion session duration	Time of manual percussion use per session	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1909-C12278	C12278	Specimen histochemical stain diagnostic abnormality type	Types of diagnostic abnormalities noted on the histochemical stains performed on the tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12248	C12248	Pathologist name	Name of pathologist who diagnosed the case	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1857-C12849	C12849	Cardiac MRI left ventricle trabeculations count	Count of trabeculations in the left ventricle when non-compaction is present	Exploratory	Cardiac Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C12480	C12480	Imaging cortex-pachygyria thickness measurement	The measurement of cortex thickness, in , of the cortex	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12384	C12384	Respiratory tracheostomy tube length measurement	Measurement of the length of the tracheostomy tube	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1912-C10856	C10856	Grip strength unit of measure	Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded	Supplemental	Grip Strength Fatigue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12342	C12342	Respiratory lung volume recruitment inhale pressure value	Value of the inhale pressure setting for the lung volume recruitment device	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1909-C17907	C17907	Specimen histochemical stain diagnostic abnormality text	Text description of details of the specified diagnostic abnormalities on the histochemical stains	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12876	C12876	Echocardiogram spectral doppler ejection time	The time measured using spectral doppler clinically from onset to incisural notch of the carotid or other pulse; properly the time of ejection of blood from the left ventricle beginning with aortic valve opening and ending with aortic valve closure	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12260	C12260	Biopsy and autopsy perivascular inflammation type	Evidence of vascular damage includes damaged vessels in association with perivascular inflammation and the presence of fibrin thrombi located within vascular spaces	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1833-C00214	C00214	Living with persons count	Count of other people with whom the participant/subject currently lives, cohabits, or stays	Supplemental	Social Status	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.