CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18759 Surgery reason indication other text

The free-text field related to 'Surgery reason indication type' specifying other text. Reason participant/subject is in need of surgery

 Supplemental Surgical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19854 Medical history scoliosis surgery since last visit indicator

Indicator of scoliosis surgery since last study visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19918 Biopsy and autopsy strongly succinate dehydrogenase reactive blood vessels status

Strongly-succinate dehydrogenase (SDH) blood vessels status in biopsy

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

 Supplemental General Core False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19816 Medical history musculoskeletal total broken bones type

Type of bones broken

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19775 Medical history sleep pulmonary assessment indicator

Indicator of sleep study completed

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19825 Medical history musculoskeletal scoliosis diagnosis date

Date of first detection of scoliosis

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19888 Age biopsy year value

Age (in years) of participant/subject at biopsy

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19783 Medical history pulmonary bilevel positive airway pressure indicator

Indicator of bilevel positive airway pressure

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19896 Elevated erythrocyte sedimentation rate indicator

Indicator of whether participant/subject experienced elevated erythrocyte sedimentation rate

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19791 Medical history pulmonary antibiotics use frequency

Frequency of antibiotic use

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19904 Symptom disease lab data known disease other text

Text of other symptoms, signs, known diseases, and lab data

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19800 Medical history endocrine menarche indicator

Indicator of start of menarche

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19808 Medical history abdominal difficulty swallowing indicator

Indicator of history of difficulty swallowing

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C20322 Symptom neuromuscular presentation type

Symptoms of neuromuscular disease in participant/ subject at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19767 Medical history pulmonary difficulty diagnosis indicator

Indicator of difficulty breathing

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

 Supplemental Family History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18719 Imaging slice orientation type other text

The free-text field related to 'Imaging slice orientation type', specifying other text. The slice orientation used in imaging acquisition

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18714 Imaging radio frequency coil channel count other text

The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19849 Medical history ventilator setting type

Type of Ventilator settings

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 276 - 300 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.