CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1050
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C19790 Medical history pulmonary current intermittent positive pressure breathing use status

Status of current Intermittent Positive Pressure Breathing (IPPB) use

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19908 Atrophy hypotrophy presence status

The status as related to presence of atrophy/hypotrophy fibers

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19799 Medical history endocrine breast bud formation age value

Text of age of breast bud formation detected

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C20327 Biopsy autopsy excessive intracellular lipid status

The status related to excessive intracellular lipid storage pathology which involves excess Oil Red O+ material that is easily identifiable on light microscopy and is evident on other stains including H and E.

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19807 Medical history abdominal difficulty eating indicator

Indicator of history of difficulty eating

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19766 Medical history auditory deafness diagnosis date

Date deafness first detected

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18715 Imaging radio frequency coil other text

The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19815 Medical history musculoskeletal total broken bones count

Number of toral bones broken

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19774 Medical history snoring presence indicator

Indicator of snoring

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19892 Symptom presentation eye symptoms type

Eye symptoms participant/ subject shows at presentation

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19824 Medical history musculoskeletal scoliosis diagnosis indicator

Indicator of scoliosis

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19782 Medical history asthma pulmonary inhalers use frequency

Frequency of use of steroid inhalers used for asthma

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19900 Laboratory findings autoantibody known text

Text of the known autoantibodies in patient

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19859 Medical history joint dislocation since last visit indicator

Indicator of joint dislocations since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19518 Country of origin name

Name of patient/participant's country of origin

Supplemental Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19955 Immunohistochemistry dystrophin status

The status of dystrophin (BMD hotspot) in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19867 Medical history speech therapy since last visit frequency

Frequency of change in speech therapy since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19915 Biopsy and autopsy non rimmed vacuoles estimated percentage value

Non-rimmed vacuoles estimated percentage value

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19731 Birth respiratory status

Respiratory status at time mother birthed to the participant/subject

Supplemental Prenatal and Perinatal History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19963 Immunohistochemistry beta dystroglycan status

The status of Beta dystroglycan in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19875 Medical history seizures since last visit indicator

Indicator of seizures since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19923 Biopsy and autopsy minicores estimated percentage value

Minicores estimated percent count

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19836 Pain anatomic site text

Anatomic Site of body pain

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19657 Family history birth year text

Free-text field to indicate the year of birth of the participant/subject's relative with the family history of a specific condition.

Supplemental Family History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18759 Surgery reason indication other text

The free-text field related to 'Surgery reason indication type' specifying other text. Reason participant/subject is in need of surgery

Supplemental Surgical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 1 - 25 of 1050

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.