CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 951 - 975 of 1051

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1909-C12277	C12277	Biospecimen fragment collect count	Count of fragments collected in the tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12247	C12247	Biopsy and Autopsy tissue collection method type	The type of method used for collection of the tissue specimen	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12359	C12359	Respiratory other airway clearance method name	Name of airway clearance method used by the participant/subject other than mechanical in-exsufflator, manual cough assist, manual percussion, postural drainage, lung volume recruitment, and intrapulmonary percussive ventilation	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12319	C12319	Respiratory device type	Type of airway clearance or secretion mobilization device(s) used by the participant/subject	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C12479	C12479	Imaging cortex-pachygyria site type	The anatomical site(s) of the cortex-pachygyria	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12722	C12722	Electrophysiology repetitive nerve high frequency	Value, in Hz, of the specific frequency used for the high frequency stimulation activation technique, if applicable, in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1898-C11100	C11100	Pulmonary function test position type	Participant's/subject's position for the pulmonary function assessment	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C17969	C17969	Electrophysiology sensory nerve segment name	The name of the segment used in sensory nerve conduction studies	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C18843	C18843	Respiratory intrapulmonary percussive ventilation or MetaNeb other text	The free-text field related to 'Respiratory intrapulmonary percussive ventilation or MetaNeb frequency' specifying other text. Frequency of intrapulmonary percussive ventilation or MetaNeb use	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12730	C12730	Needle electromyography motor unit action potential amplitude measurement	The amplitude value of the motor unit action potential (MUAP) measure during needle electromyography	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1898-C12307	C12307	Ulna length measure tool name	Instrument used to measure ulna length	Supplemental-Highly Recommended	Pulmonary Function Testing	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C18851	C18851	Respiratory support ventilation mode other text	The free-text field related to 'Respiratory support ventilation mode type' specifying other text. Type of mode of ventilation for the support ventilation device used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C10583	C10583	Imaging base resolution value	Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1038-C12409	C12409	Pulmonary gas exchange measurement type	The type of gas exchange measurement used on participant/subject	Supplemental	Measures of Gas Exchange	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1855-C12181	C12181	Dual X-ray absorptiometry lumbar spine T score	Dual X-ray absorptiometry (DEXA) Lspine T score result value	Exploratory	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12392	C12392	Respiratory inspiratory positive airway pressure positive inspiratory pressure value	Value of the inspiratory positive airway pressure or positive inspiratory pressure	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12705	C12705	Electrophysiology sensory nerve velocity measurement	The signal transmission speed measured during the sensory nerve conduction study	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1038-C12417	C12417	Pulmonary blood gas bicarbonate value	The numeric value of the bicarbonate (HCO3) level in the blood	Supplemental	Measures of Gas Exchange	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1855-C12189	C12189	Dual X-ray absorptiometry whole body total lean value	Percentage of lean whole body mass. Dual X-ray absorptiometry (DEXA)	Exploratory	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12400	C12400	Respiratory oxygen administration method name	Name of method of administration of supplemental oxygen used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12714	C12714	Electrophysiology blink reflex test contralateral R2 latency value	Duration of contralateral R2 latency in the blink reflex test	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1038-C18852	C18852	Respiratory oxygen administration method other text	The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used	Supplemental	Measures of Gas Exchange	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12765	C12765	Electrophysiology short pre-exercise compound muscle action potential time	The time intervals used to measure compound muscle action potential (CMAP) during pre-exercise	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1855-C12197	C12197	Dual X-ray absorptiometry left leg lean value	Left leg lean muscle mass for dual X-ray absorptiometry (DEXA)	Exploratory	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

Displaying 951 - 975 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.