CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1057-C12482	C12482	Imaging cortex lissencephaly (LIS type 1) thickness measurement	The measurement of cortex thickness, in , of the lissencephaly (LIS type 1) site	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1909-C18828	C18828	Histochemical stains used other text	The free-text field related to 'Histochemical stains used type' specifying other text. Type of standard histochemical stains used on the tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12878	C12878	Echocardiogram spectral doppler isovolumic relaxation time	Isovolumic relaxation time (IVRT) measured using spectral doppler. IVRT is an interval in the cardiac cycle, from the aortic component of the second heart sound, that is, closure of the aortic valve, to onset of filling by opening of the mitral valve. It can be used as an indicator of diastolic dysfunction	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12262	C12262	Biopsy and autopsy microorganisms name	Name of microorganisms identified in biopsy or autopsy specimen	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12380	C12380	Respiratory negative pressure initiation age value	Value of the age of the participant/subject at the time of his or her initiation for using the non-invasive, negative pressure device	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12338	C12338	Respiratory lung volume recruitment method type	Type of lung volume recruitment method used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1910-C12234	C12234	Preservation technique used amount value	Value of the amount of preservation solution or material used to preserve the specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12886	C12886	Echocardiogram speckle tracking echocardiography longitudinal stain measurement	Speckle Tracking Echocardiography analyzes motion within an ultrasonic window by tracking interference patterns and natural acoustic reflections. Reflections are tracked and resolved into angle-independent two-dimensional (2D) and three-dimensional strain-based sequences	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12388	C12388	Respiratory ventilation mode bi-level positive pressure type	Type of bi-level positive pressure ventilation used by the support ventilation device	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12346	C12346	Respiratory lung volume recruitment breath per cycle count	Count of the number of breaths per cycle of lung volume recruitment device use	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12741	C12741	Electrophysiology neuromuscular jitter stimulation type	Indicator of the stimulation technique, if applicable, used for activation in the neuromuscular jitter study being described	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C18851	C18851	Respiratory support ventilation mode other text	The free-text field related to 'Respiratory support ventilation mode type' specifying other text. Type of mode of ventilation for the support ventilation device used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C10587	C10587	Imaging echo spacing value	Measurement, in milliseconds, of the echo spacing used in diffusion acquisition	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12752	C12752	Electrophysiology heart rate variability value	The heart rate variability with deep breathing measured during autonomic function testing	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1855-C12184	C12184	Dual X-ray absorptiometry proximal femur T score	Dual X-ray absorptiometry (DEXA) proximal femur T score result value	Exploratory	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1038-C12409	C12409	Pulmonary gas exchange measurement type	The type of gas exchange measurement used on participant/subject	Supplemental	Measures of Gas Exchange	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12708	C12708	Electrophysiology H-reflex latency right value	The H-reflex duration of latency for the right side of the body	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12392	C12392	Respiratory inspiratory positive airway pressure positive inspiratory pressure value	Value of the inspiratory positive airway pressure or positive inspiratory pressure	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12760	C12760	Electrophysiology quantitative sweat function proximal leg measurement	The amount of sweat collected on the proximal leg	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1855-C12192	C12192	Dual X-ray absorptiometry whole body bone mineral density value	The amount of bone mineral density (BMD)for dual X-ray absorptiometry (DEXA)	Exploratory	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1038-C12417	C12417	Pulmonary blood gas bicarbonate value	The numeric value of the bicarbonate (HCO3) level in the blood	Supplemental	Measures of Gas Exchange	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12717	C12717	Electrophysiology repetitive nerve stimulation study stimulus intensity value	Value, in mV, of stimulation intensity in the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12400	C12400	Respiratory oxygen administration method name	Name of method of administration of supplemental oxygen used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C10964	C10964	Imaging eddy current induced spectral distortion correction indicator	Indicator as to whether image post-processing has included co-registering to b=0 image and correction for subject motion and eddy current induced distortion (affine transformation)	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C12768	C12768	Electrophysiology short post-exercise compound muscle action potential measurement	The compound muscle action potential (CMAP) values measured at the post-exercise intervals	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.