CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12402 Respiratory oxygen use frequency

Frequency of use of supplemental oxygen

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12770 Electrophysiology long pre-exercise compound muscle action potential measurement

Compound muscle action potential (CMAP) measurement recorded pre- long exercise

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17965 Echocardiogram abnormal result comment text

Free text about echocardiogram results that are not normal

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17921 Dual X-ray absorptiometry current corticosteroid use indicator

Whether or not the participant is currently taking any corticosteroids for Dual X-ray absorptiometry (DEXA)

Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12727 Electrophysiology repetitive nerve postactivation area measurement

Measurement, in mVms, of the area of the postactivation being described at the time specified for the repetitive nerve study being recorded

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18837 Respiratory manual cough assist use other text

The free-text field related to 'Respiratory manual cough assist use frequency' specifying other text. Frequency of use of the manual cough assist method (e.g. Heimlich style maneuver)

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12304 Pulmonary function test equipment model name

Name of model of the pulmonary function test equipment

Supplemental-Highly Recommended Pulmonary Function Testing Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12735 Needle electromyography motor unit action potential recruitment type

The recruitment of the motor unit action potential measure during needle electromyography

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18845 Respiratory intrapulmonary percussive ventilation cup liquid other text

The free-text field related to 'Respiratory intrapulmonary percussive ventilation cup liquid type' specifying other text. Type of liquid in the intrapulmonary percussive ventilation cup

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12743 Electrophysiology neuromuscular jitter mean consecutive difference average value

Value, in microseconds, for the average of mean consecutive differences (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12895 Echocardiogram right ventricle systolic internal dimension (RVIDs) measurement

Right ventricular end - systolic internal dimension (RVIDs) measured with echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12293 Tissue specimen intraepidermal nerve fiber density value

Value of the intraepidermal nerve fiber density in the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17902 Elevated creatine kinase value

The elevated creatine kinase value

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12704 Electrophysiology sensory nerve onset or peak latency value

The onset or peak latency measured during the sensory nerve conduction study

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10744 Echocardiogram left ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension assessed with echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12232 Laboratory director name

Name of laboratory director where assessment was performed

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17874 Pulmonary function test not done indicator

Was the pulmonary function test not done

Supplemental Pulmonary Function Testing Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12388 Respiratory ventilation mode bi-level positive pressure type

Type of bi-level positive pressure ventilation used by the support ventilation device

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12346 Respiratory lung volume recruitment breath per cycle count

Count of the number of breaths per cycle of lung volume recruitment device use

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10932 Imaging lesion found indicator

Indicator of whether lesions are found within the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18831 Tissue specimen section quantify other text

The free-text field related to 'Tissue specimen section quantify type' specifying other text. Type of quantification used in evaluating the sections taken from the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12865 Echocardiogram left atrial volume measurement

Volume of the left atrium measured with echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12846 Cardiac MRI left ventricle posterior wall thickness measurement

Measurement of the thickness of the posterior wall of the left ventricle as obtained by cardiac MRI

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12354 Respiratory intrapulmonary percussive ventilation or MetaNeb frequency

Frequency of intrapulmonary percussive ventilation or MetaNeb use

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 251 - 275 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.