CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1051
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10865 Dynamometry hand held muscle test performed date

Date (and time, if applicable and known) the hand held dynamometry was performed on the participant/subject

 Supplemental Hand Held Dynamometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17794 Imaging diffusion second b value

Value, in square millimeters per second, of the second b-value used in diffusion acquisition

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10867 Dynamometry hand held muscle test performed anatomic site

The type of muscle tested using hand held dynamometry

 Supplemental Hand Held Dynamometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17795 Imaging diffusion third b value

Value, in square millimeters per second, of the third b-value used in diffusion acquisition

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10869 Dynamometry hand held muscle test result

The results of the trial performed by the participant/subject on the hand held dynamometer

 Supplemental Hand Held Dynamometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17798 Imaging contrast agent name

Name of imaging contrast agent used

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17783 Grip strength fatigue percent target not attain indicator

Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12603 Birth length value

Measurement of the participant's/subject's length at birth

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12940 Birth head circumference value

Circumferential measurement of the head at the widest point taken at birth - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12671 Surgery lifetime total count

Total number of surgeries the participant/subject has undergone in his/her lifetime

 Core Surgical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

 Supplemental Surgical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12381 Respiratory tracheostomy date

Date of the participant's/subject's tracheostomy

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12339 Respiratory lung volume recruitment use frequency

Frequency of lung volume recruitment use

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12480 Imaging cortex-pachygyria thickness measurement

The measurement of cortex thickness, in , of the cortex

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12389 Respiratory ventilation mode assist control type

Type of assist control ventilation used

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12347 Respiratory high frequency chest wall oscillation system brand name

Name of the brand of thee high frequency chest wall oscillation system brand of device used

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18859 Imaging cerebellum abnormality other text

The free-text field related to 'Imaging cerebellum abnormality type' specifying other text. The type of abnormality in the cerebellum on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12488 Imaging subcortical cyst indicator

Indicator of whether subcortical cysts are found in the image studies

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 26 - 50 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.