CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C12331	Respiratory manual cough assist session time	The duration of manual cough assist use per session	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C16146	Family history relative age at death value	Age at death of the participant/subject's relative, if applicable	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C16159	Family history relative age at onset value	Age the participant's/subject's relative experienced the onset of the disease or disorder	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17402	Site name	The name of the site for the study	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C14964	Sedation used indicator	Whether the participant/subject was administered any sedation	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C15572	Imaging diffusion direction count	Count of diffusion directions in the associated diffusion imaging study	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C05460	Seizure indicator	Indicator of seizure activity	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C10974	Manual muscle testing muscle score	The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C10869	Dynamometry hand held muscle test result	The results of the trial performed by the participant/subject on the hand held dynamometer	Supplemental	Hand Held Dynamometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C10860	Grip strength fatigue percent target hold duration	Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C10975	Manual muscle testing anatomic site	The anatomic site of the muscle assessed during the performance of the manual muscle testing	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C10871	Dynamometry hand held muscle test able to break technique indicator	Indicator of whether the examiner overpowered the maximal effort by the participant/subject, thereby producing a measurement of eccentric muscle strength	Supplemental	Hand Held Dynamometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C10851	Grip strength test indicator	Indicator whether the grip strength testing was done	Supplemental	Grip Strength Fatigue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17783	Grip strength fatigue percent target not attain indicator	Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded	Supplemental	Grip Strength Fatigue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17793	Imaging diffusion fourth b value	Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C18816	Manual muscle testing position other text	The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Supplemental	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C10872	Dynamometry hand held no result reason	Reason why there was no hand held dynamometry result for the muscle	Supplemental	Hand Held Dynamometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C10852	Grip strength test performed date and time	Date (and time, if applicable and known) that grip strength testing was done	Supplemental	Grip Strength Fatigue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17794	Imaging diffusion second b value	Value, in square millimeters per second, of the second b-value used in diffusion acquisition	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17790	Dynamometry hand held time	Time the hand held dynamometry was performed	Supplemental	Hand Held Dynamometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Supplemental	Grip Strength Fatigue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Core	Prior and Concomitant Medications	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17795	Imaging diffusion third b value	Value, in square millimeters per second, of the third b-value used in diffusion acquisition	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17798	Imaging contrast agent name	Name of imaging contrast agent used	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.