C12331
Respiratory manual cough assist session time
The duration of manual cough assist use per session
Supplemental
Respiratory Interventions
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C16146
Family history relative age at death value
Age at death of the participant/subject's relative, if applicable
Supplemental
Family History
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C16159
Family history relative age at onset value
Age the participant's/subject's relative experienced the onset of the disease or disorder
Supplemental
Family History
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17402
Site name
The name of the site for the study
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C14964
Sedation used indicator
Whether the participant/subject was administered any sedation
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C15572
Imaging diffusion direction count
Count of diffusion directions in the associated diffusion imaging study
Exploratory
Diffusion Tensor Imaging (DTI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C05460
Seizure indicator
Indicator of seizure activity
Supplemental
Intake Medical History
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10974
Manual muscle testing muscle score
The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle
Supplemental
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10869
Dynamometry hand held muscle test result
The results of the trial performed by the participant/subject on the hand held dynamometer
Supplemental
Hand Held Dynamometry
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C00015
Education year count
Number of years of education completed (age 5 and beyond)
Supplemental-Highly Recommended
General Core
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10860
Grip strength fatigue percent target hold duration
Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10975
Manual muscle testing anatomic site
The anatomic site of the muscle assessed during the performance of the manual muscle testing
Supplemental
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10871
Dynamometry hand held muscle test able to break technique indicator
Indicator of whether the examiner overpowered the maximal effort by the participant/subject, thereby producing a measurement of eccentric muscle strength
Supplemental
Hand Held Dynamometry
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10851
Grip strength test indicator
Indicator whether the grip strength testing was done
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17783
Grip strength fatigue percent target not attain indicator
Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17793
Imaging diffusion fourth b value
Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition
Exploratory
Diffusion Tensor Imaging (DTI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C18816
Manual muscle testing position other text
The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment
Supplemental
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10872
Dynamometry hand held no result reason
Reason why there was no hand held dynamometry result for the muscle
Supplemental
Hand Held Dynamometry
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10852
Grip strength test performed date and time
Date (and time, if applicable and known) that grip strength testing was done
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17794
Imaging diffusion second b value
Value, in square millimeters per second, of the second b-value used in diffusion acquisition
Exploratory
Diffusion Tensor Imaging (DTI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17790
Dynamometry hand held time
Time the hand held dynamometry was performed
Supplemental
Hand Held Dynamometry
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10854
Grip device width setting value
Value of the width setting on the grip device used to test the participant/subject's grip strength
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C02002
Medication prior or concomitant use indicator
Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol
Core
Prior and Concomitant Medications
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17795
Imaging diffusion third b value
Value, in square millimeters per second, of the third b-value used in diffusion acquisition
Exploratory
Diffusion Tensor Imaging (DTI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17798
Imaging contrast agent name
Name of imaging contrast agent used
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)