C12331
Respiratory manual cough assist session time
The duration of manual cough assist use per session
Supplemental
Respiratory Interventions
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C16159
Family history relative age at onset value
Age the participant's/subject's relative experienced the onset of the disease or disorder
Supplemental
Family History
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C16146
Family history relative age at death value
Age at death of the participant/subject's relative, if applicable
Supplemental
Family History
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17402
Site name
The name of the site for the study
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C14964
Sedation used indicator
Whether the participant/subject was administered any sedation
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C15572
Imaging diffusion direction count
Count of diffusion directions in the associated diffusion imaging study
Exploratory
Diffusion Tensor Imaging (DTI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C05460
Seizure indicator
Indicator of seizure activity
Supplemental
Intake Medical History
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10972
Manual muscle testing position type
The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment
Supplemental
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C00015
Education year count
Number of years of education completed (age 5 and beyond)
Core
Social Status
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10858
Grip strength target value
Value of the target grip strength for the grip strength fatigue trial being recorded
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10974
Manual muscle testing muscle score
The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle.
Supplemental
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C00015
Education year count
Number of years of education completed (age 5 and beyond)
Supplemental-Highly Recommended
General Core
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10859
Grip strength fatigue percent target value
Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10864
Dynamometry hand held muscle test performed indicator
Indicator of whether the hand held dynamometry testing was done.
Supplemental
Hand Held Dynamometry
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10975
Manual muscle testing anatomic site
The anatomic site of the muscle assessed during the performance of the manual muscle testing.
Supplemental
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10860
Grip strength fatigue percent target hold duration
Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10865
Dynamometry hand held muscle test performed date
Date (and time, if applicable and known) the hand held dynamometry was performed on the participant/subject
Supplemental
Hand Held Dynamometry
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17793
Imaging diffusion fourth b value
Value, in square millimeters per second, of the fourth b-value used in diffusion acquisition.
Exploratory
Diffusion Tensor Imaging (DTI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C18816
Manual muscle testing position other text
The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment
Supplemental
Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10851
Grip strength test indicator
Indicator whether the grip strength testing was done
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17783
Grip strength fatigue percent target not attain indicator
Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10867
Dynamometry hand held muscle test performed anatomic site
The type of muscle tested using hand held dynamometry.
Supplemental
Hand Held Dynamometry
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17794
Imaging diffusion second b value
Value, in square millimeters per second, of the second b-value used in diffusion acquisition.
Exploratory
Diffusion Tensor Imaging (DTI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C17798
Imaging contrast agent name
Name of imaging contrast agent used
Supplemental
Brain Magnetic Resonance Imaging (MRI)
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
C10852
Grip strength test performed date and time
Date (and time, if applicable and known) that grip strength testing was done
Supplemental
Grip Strength Fatigue
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)