CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00003 Postnatal age value

Time elapsed after birth of the participant/subject

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12515 Dual X-ray absorptiometry distal forearm Z score

The Z score the for dual X-ray absorptiometry (DEXA) of the distal forearm

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17434 EEG other abnormalities indicator

The yes/no indicator for other electroencephalography (EEG) abnormalities

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17430 EEG seizures indicator

The yes/no indicator for electroencephalography (EEG) seizures

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17432 EEG focal slowing indicator

The yes/no indicator for electroencephalography (EEG) focal slowing

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17431 EEG focal sharp waves indicator

The yes/no indicator for electroencephalography (EEG) focal sharp waves

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17429 EEG abnormal indicator

The yes/no indicator for abnormal assessment of electroencephalography (EEG)

 Supplemental Short Scalp Electroencephalography (EEG) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12412 Pulmonary gas exchange end tidal transcutaneous carbon dioxide value

The value of the pressure of the end tidal CO2 (ETCO2) or transcutaneous carbon dioxide (TCCO2) check

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12411 Pulmonary gas exchange oxygen saturation value

The value of the oxygen saturation (SpO2) check

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10584 Imaging phase resolution percentage value

The value in percent of the phase resolution used in imaging acquisition

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12755 Electrophysiology Valsalva ratio

The Valsalva ratio measured during autonomic function testing

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

 Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12729 Needle electromyography spontaneous activity type

The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12486 Imaging other cortical abnormality type

The type of other cortical abnormality

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12254 Biopsy and autopsy myopathy-associated pathological structures type

The type of myopathy-associated pathological structures seen in the histology of the biopsy or autopsy specimen

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10867 Dynamometry hand held muscle test performed anatomic site

The type of muscle tested using hand held dynamometry

 Supplemental Hand Held Dynamometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19683 Imaging ultrasound muscle pattern type

The type of muscle pattern displayed on the ultrasound

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12409 Pulmonary gas exchange measurement type

The type of gas exchange measurement used on participant/subject

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12506 Imaging eye abnormality type

The type of eye abnormalities

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12739 Electrophysiology neuromuscular jitter electrode type

The type of electrode used for the neuromuscular jitter test

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12413 Pulmonary blood gas type

The type of blood gas collected

 Supplemental Measures of Gas Exchange False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12172 Dual X-ray absorptiometry beam technique type

The type of beam technique used for Dual X-ray absorptiometry (DEXA)

 Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12484 Imaging cortex-polymicrogyria site type

The type of anatomical site(s) of the cortex-polymicrogyria

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 176 - 200 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.