CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1037-C12348	C12348	Respiratory high frequency chest wall oscillation system vest type	Type of vest used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19849	C19849	Medical history ventilator setting type	Type of Ventilator settings	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1910-C12291	C12291	Tissue specimen counting threshold type	Type of threshold for counting in the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C10595	C10595	Imaging parallel acquisition used type	Type of the parallel acquisition method used in imaging acquisition	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12357	C12357	Respiratory medication nebulized type	Type of the medication(s) nebulized	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12911	C12911	Echocardiogram right ventricle systolic pressure estimation type	Type of technique used to estimate the right ventricular systolic pressure	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12390	C12390	Respiratory ventilation mode synchronized intermittent mandatory ventilation pressure support type	Type of synchronized intermittent mandatory ventilation (SIMV) with pressure support ventilation used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1909-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1910-C12235	C12235	Histochemical stains used type	Type of standard histochemical stains used on the tissue specimen	Supplemental	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12226	C12226	Specimen source type	Type of specimen collection source	Supplemental-Highly Recommended	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1909-C12226	C12226	Specimen source type	Type of specimen collection source	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1910-C12226	C12226	Specimen source type	Type of specimen collection source	Supplemental-Highly Recommended	Skin Biopsies for Qualification of Intraepidermal Nerve Fibers	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C10685	C10685	Imaging slice orientation type	Type of slice orientation used in imaging acquisition	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C10685	C10685	Imaging slice orientation type	Type of slice orientation used in imaging acquisition	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19827	C19827	Seizure type	Type of seizures had	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12403	C12403	Respiratory oxygen use schedule type	Type of schedule of supplemental oxygen use	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1855-C12171	C12171	Dual X-ray absorptiometry scanner use type	Type of scanner used for dual X-ray absorptiometry (DXA)	Exploratory	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12370	C12370	Respiratory support device type	Type of respiratory support or assisted ventilation device used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12391	C12391	Respiratory assessment type	Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1038-C12391	C12391	Respiratory assessment type	Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment	Supplemental	Measures of Gas Exchange	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1833-C12605	C12605	Caregiver primary type	Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject	Supplemental	Social Status	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C10567	C10567	Imaging radio frequency coil type	Type of radio frequency (RF) coil(s) used for the body part scanned	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.