CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1904-C19858	C19858	Medical history broken bones since last visit indicator	Indicator of broken bones since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19871	C19871	Medical history cardiomyopathy since last visit indicator	Indicator of cardiomyopathy since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19866	C19866	Medical history speech therapy since last visit indicator	Indicator of change in speech therapy since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19860	C19860	Medical history strength change since last visit status	Indicator of change in strength since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19853	C19853	Medical history cough assist since last visit indicator	Indicator of cough assist since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19877	C19877	Medical history depression since last visit indicator	Indicator of depression since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19803	C19803	Dual X-ray absorptiometry scanner performed indicator	Indicator of DEXA scan performed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19806	C19806	Medical history endocrine diabetes indicator	Indicator of diabetes	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19767	C19767	Medical history pulmonary difficulty diagnosis indicator	Indicator of difficulty breathing	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19768	C19768	Medical history pulmonary difficulty ingestion relatedness indicator	Indicator of difficulty breathing relation to meal times	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19812	C19812	Medical history abdominal liver problem enzyme elevation indicator	Indicator of elevation in liver enzyme	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19843	C19843	Medical history emergency room visits since last visit indicator	Indicator of emergency room visits since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19796	C19796	Medical history cardiovascular enlarged heart diagnosis method type	Indicator of enlarged heart detection method	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19868	C19868	Medical history congenital muscular dystrophy Limb-Girdle muscular dystrophy genetic confirmation spectrum disorder since last visit indicator	Indicator of genetic confirmation of CMD to LGMD spectrum since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19856	C19856	Medical history gastrostomy tube since last visit indicator	Indicator of Gtube placed since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19769	C19769	Medical history pulmonary aspiration diagnosis indicator	Indicator of history of aspiration	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19779	C19779	Medical history asthma pulmonary assessment indicator	Indicator of history of asthma	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19763	C19763	Medical history cataracts diagnosis indicator	Indicator of history of cataracts	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19809	C19809	Medical history abdominal constipation indicator	Indicator of history of constipation	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19833	C19833	Psychiatric depression indicator	Indicator of history of depression	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19807	C19807	Medical history abdominal difficulty eating indicator	Indicator of history of difficulty eating	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19808	C19808	Medical history abdominal difficulty swallowing indicator	Indicator of history of difficulty swallowing	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19797	C19797	Medical history endocrine early puberty indicator	Indicator of history of early puberty	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19794	C19794	Medical history cardiovascular enlarged heart diagnosis indicator	Indicator of history of enlarged heart	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19761	C19761	Medical history glaucoma diagnosis indicator	Indicator of history of Glaucoma	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.