CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12883 Echocardiogram velocity of circumferential shortening corrected value

Heart rate-corrected velocity of circumferential fiber shortening (VCFc) measured using echocardiography. VCFc provides a load-independent assessment of systolic function

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00012 Education level USA type

Highest grade or level of school participant/subject has completed or the highest degree received

Supplemental Social Status Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17876 Pulmonary function test not done text

If the PFT was not performed on the participant/subject, specify other reason

Supplemental Pulmonary Function Testing Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19864 Medical history physical therapy change since last visit indicator

Indicaor of change in physical therapy since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12512 Dual X-ray absorptiometry line number

Indication of the number of each DXA performed for dual X-ray absorptiometry (DEXA)

Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10964 Imaging eddy current induced spectral distortion correction indicator

Indicator as to whether image post-processing has included co-registering to b=0 image and correction for subject motion and eddy current induced distortion (affine transformation)

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10963 Imaging B0-susceptibility distortion correction indicator

Indicator as to whether image post-processing has included co-registering to T2-weighted image(s) for B0-susceptibility distortion correction

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10593 Imaging fat signal suppressed indicator

Indicator as to whether or not fat signal was suppressed in imaging acquisition

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10691 Imaging spatially registered template indicator

Indicator as to whether or not imaging is spatially registered to a template for data analysis

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17931 Imaging magnetic resonance imaging performed indicator

Indicator as to whether or not Magnetic Resonance Imaging (MRI) on the brain has been performed on the participant/subject

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10683 Imaging T2 weighted spin-echo acquired indicator

Indicator as to whether or not T2-weighted spin-echo data acquired for spatially registering DWI data and performing spatial distortion (B0) correction

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17426 EEG sampling rate indicator

Indicator for Electroencephalography (EEG) sampling rate, commonly recorded in Hz (250-2000 Hz)

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19686 Imaging muscle MRI ultrasound pattern indicator

Indicator for pattern seen in muscle MRI or ultrasound performed

Supplemental Muscle Imaging Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19655 Family history CMD LGMD disorder indicator

Indicator for whether the participant/subject has a family history of CMD to LGMD spectrum disorder

Supplemental Family History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19831 Psychiatric anxiety indicator

Indicator of anxiety

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19878 Meical history anxiety development since last visit indicator

Indicator of anxiety since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19765 Medical history auditory deafness diagnosis indicator

Indicator of any history of deafness

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19870 Medical history arrhythmias since last visit indicator

Indicator of arrhythmias since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19852 Medical history aspiration choking since last visit indicator

Indicator of aspiration or choking since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19829 Behavioral issues indicator

Indicator of behavioral issues

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19876 Medical history behavior issue since last visit indicator

Indicator of behavioral issues since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19783 Medical history pulmonary bilevel positive airway pressure indicator

Indicator of bilevel positive airway pressure

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19786 Medical history pulmonary bilevel positive airway pressure hospitalization indicator

Indicator of bilevel positive airway pressure hospitilization

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19847 Medical history bilevel positive airway pressure ventilator since last visit indicator

Indicator of bilevel positive airway pressure or ventilator adjusted since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19814 Medical history musculoskeletal broken bones indicator

Indicator of broken bones

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 176 - 200 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.