CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12255 Biopsy and autopsy central nuclei estimated fibers percent value

Estimated percent of fibers in central nuclei

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12256 Biopsy and autopsy eccentric nuclei estimated fibers percent value

Estimated percent of fibers in eccentric nuclei

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

 Supplemental Demographics False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00022 Ethnicity USA maternal category

Ethnicity the participant/subject's mother most closely identifies with

 Supplemental Demographics False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12260 Biopsy and autopsy perivascular inflammation type

Evidence of vascular damage includes damaged vessels in association with perivascular inflammation and the presence of fibrin thrombi located within vascular spaces

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12263 Biopsy and autopsy abnormal storage material type

Excesses of material can be detected in some lipid and glycogen storage diseases, which may be evident on Oil Red O and PAS stains, respectively

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19895 Symptom presentation toxin supplement drug exposure text

Exposure to toxins, supplements, and drugs participant/ subject shows at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19892 Symptom presentation eye symptoms type

Eye symptoms participant/ subject shows at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C11136 Country origin paternal name

Father's country or countries of origin

 Supplemental Demographics False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12746 Electrophysiology fiber density quantitative result value

Fiber density measured for a particular muscle and side

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12525 Biopsy and autopsy fiber abnormality type

Fiber type abnormalities on a muscle biopsy

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19663 Family history relationship type

Field where participant/subject can indicate which family member(s) has a history of the listed conditions

 Supplemental Family History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17965 Echocardiogram abnormal result comment text

Free text about echocardiogram results that are not normal

 Exploratory Echocardiogram False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17929 Cardiac MRI overall impression text

Free-text field describing the overall impression of the cardiac magnetic resonance imaging (MRI) being reported

 Exploratory Cardiac Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02498 Imaging scanner software version number text

Free-text field specifying the version number of the imaging scanner software

 Exploratory Diffusion Tensor Imaging (DTI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C54237 Echocardiogram pericardial effusion abnormal text

Free-text field to describe pericardial effusion or abnormality observed by echocardiogram

 Exploratory Echocardiogram False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19659 Family history side type

Free-text field to indicate the side of the family in which the participant/subject has a family history of the listed conditions

 Supplemental Family History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19657 Family history birth year text

Free-text field to indicate the year of birth of the participant/subject's relative with the family history of a specific condition

 Supplemental Family History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19791 Medical history pulmonary antibiotics use frequency

Frequency of antibiotic use

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19784 Medical history pulmonary bilevel positive airway pressure frequency

Frequency of bilevel positive airway pressure

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19865 Medical history physical therapy change since last visit frequency

Frequency of change in physical therapy since last visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19867 Medical history speech therapy since last visit frequency

Frequency of change in speech therapy since last visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12340 Respiratory lung volume recruitment daily frequency

Frequency of daily use of the lung volume recruitment

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12330 Respiratory manual cough assist use daily frequency

Frequency of daily use of the manual cough assist method (e.g. Heimlich style maneuver)

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12321 Respiratory mechanical in-exsufflator device use daily frequency

Frequency of daily use of the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 126 - 150 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.