CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12892 Echocardiogram left ventricle wall motion abnormal indicator

Indicator of wall motion abnormalities in the left ventricle on the echocardiogram

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12893 Echocardiogram right ventricle wall motion abnormal indicator

Indicator of wall motion abnormalities in the right ventricle on the echocardiogram

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19777 Medical history wheezing pulmonary assessment indicator

Indicator of wheezing

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19844 Medical history wheezing since last visit indicator

Indicator of wheezing since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12483 Imaging cortex-polymicrogyria indicator

Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Supplemental Family History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10594 Imaging parallel acquisition used indicator

Indicator of whether a parallel acquisition method is used in imaging acquisition

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12868 Echocardiogram left ventricular trabeculation ratio indicator

Indicator of whether any of the trabeculations are more than 2:1 ratio, trabecular layer to compact layer as assessed by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12481 Imaging cortex lissencephaly (LIS type 1) indicator

Indicator of whether cortex lissencephaly is found within the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12478 Imaging cortex-pachygyria indicator

Indicator of whether cortex-pachygyria are found within the image studies

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12239 Electron microscopy performed indicator

Indicator of whether electron microscopy was performed

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12239 Electron microscopy performed indicator

Indicator of whether electron microscopy was performed

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12505 Imaging eye abnormality indicator

Indicator of whether eye abnormalities are present

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12854 Cardiac MRI gadolinium contrast use indicator

Indicator of whether gadolinium-based contrast was used for the cardiac magnetic resonance imaging (MRI)

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10932 Imaging lesion found indicator

Indicator of whether lesions are found in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12385 Respiratory tracheostomy tube cuffed indicator

Indicator of whether or not the tracheostomy tube that the participant/subject uses has cuffs

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12485 Imaging other cortical abnormality indicator

Indicator of whether other cortical abnormalities of the brain are present

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12476 Imaging other incidental finding indicator

Indicator of whether other incidental findings are found in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19898 Elevated C reactive protein indicator

Indicator of whether participant/subject experienced elevated C reactive protein levels

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17901 Elevated creatine kinase Indicator

Indicator of whether participant/subject experienced elevated creatine kinase levels

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19896 Elevated erythrocyte sedimentation rate indicator

Indicator of whether participant/subject experienced elevated erythrocyte sedimentation rate

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

Supplemental Social Status Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 276 - 300 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.