CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 551 - 575 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19868 Medical history congenital muscular dystrophy Limb-Girdle muscular dystrophy genetic confirmation spectrum disorder since last visit indicator

Indicator of genetic confirmation of CMD to LGMD spectrum since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19876 Medical history behavior issue since last visit indicator

Indicator of behavioral issues since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19884 Motor function history maintain indicator

Indicator of motor function history maintained

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19844 Medical history wheezing since last visit indicator

Indicator of wheezing since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19852 Medical history aspiration choking since last visit indicator

Indicator of aspiration or choking since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19860 Medical history strength change since last visit status

Indicator of change in strength since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19861 Medical history roll in bed unassisted since last visit status

Status of assistance needed to roll over in bed since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19869 Medical history gene mutation text

Text specifying which gene has been mutated to confirm CMD to LGMD spectrum

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19877 Medical history depression since last visit indicator

Indicator of depression since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19885 Motor function history age lost function value

Age lost number

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19845 Medical history intubated since last visit indicator

Indicator of intubation since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19853 Medical history cough assist since last visit indicator

Indicator of cough assist since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19862 Medical history stumble since last visit indicator

Indicator of stumbling since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19870 Medical history arrhythmias since last visit indicator

Indicator of arrhythmias since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19878 Meical history anxiety development since last visit indicator

Indicator of anxiety since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19886 Motor function history lost function date

Date of motor function lost

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19846 Medical history tracheostomy since last visit indicator

Indicator of tracheostomy since last visit indicator

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19854 Medical history scoliosis surgery since last visit indicator

Indicator of scoliosis surgery since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10974 Manual muscle testing muscle score

The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10975 Manual muscle testing anatomic site

The anatomic site of the muscle assessed during the performance of the manual muscle testing

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18816 Manual muscle testing position other text

The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10971 Manual muscle testing visit type

The type of visit at which the manual muscle testing was performed

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 551 - 575 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.