CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

 Supplemental-Highly Recommended General Core False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

 Supplemental General Core False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00020 Ethnicity USA category

Category of ethnicity the participant most closely identifies with

 Core General Core False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core General Core False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

 Core General Core False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19741 Goniometry wrist measurement

Measurement in degrees of the passive range of motion for wrist

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19742 Goniometry finger measurement

Measurement in degrees of the passive range of motion for fingers

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19743 Goniometry toe measurement

Measurement in degrees of the passive range of motion for toes

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19744 Goniometry neck measurement

Measurement in degrees of the passive range of motion for neck

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19745 Goniometry hip measurement

Measurement in degrees of the passive range of motion for hip

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19500 Assessment performed date

The date of assessment of the examination being performed

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19746 Goniometry knee measurement

Measurement in degrees of the passive range of motion for knee

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19739 Goniometry shoulder measurement

Measurement in degrees of the passive range of motion for shoulder abduction

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19747 Goniometry ankle measurement

Measurement in degrees of the passive range of motion for ankle

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19740 Goniometry elbow measurement

Measurement in degrees of the passive range of motion for elbow

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19748 Goniometry torso measurement

Measurement in degrees of the passive range of motion for torso

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 401 - 425 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.