CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19518 Country of origin name

Name of patient/participant's country of origin

Supplemental Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12381 Respiratory tracheostomy date

Date of the participant's/subject's tracheostomy

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12502 Imaging anterior commissure change status

Status related to changes in the anterior limb internal capsule observed in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12339 Respiratory lung volume recruitment use frequency

Frequency of lung volume recruitment use

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12294 Laboratory pathology normal range

Range of intraepidermal nerve fiber density that is considered normal at the pathology laboratory examining the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17903 Biopsy and autopsy abnormalities on immunohistochemistry text

Text regarding abnormalities on immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19795 Medical history cardiovascular enlarged heart diagnosis date

Date of first detection of enlarged heart

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12234 Preservation technique used amount value

Value of the amount of preservation solution or material used to preserve the specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17876 Pulmonary function test not done text

If the PFT was not performed on the participant/subject, specify other reason

Supplemental Pulmonary Function Testing Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12389 Respiratory ventilation mode assist control type

Type of assist control ventilation used

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17434 EEG other abnormalities indicator

The yes/no indicator for other electroencephalography (EEG) abnormalities

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12347 Respiratory high frequency chest wall oscillation system brand name

Name of the brand of thee high frequency chest wall oscillation system brand of device used

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10933 Imaging lesion found type

Type of lesions found in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18832 Tissue specimen section quantify volume normalize other text

The free-text field related to 'Tissue specimen section quantify volume normalize type' specifying other text. Type of method used to normalize the volume of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19892 Symptom presentation eye symptoms type

Eye symptoms participant/ subject shows at presentation

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19804 Dual X-ray absorptiometry scanner performed date

Date of DEXA scan performed

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12243 Microscopy epon embedded tissue abnormality type

Type of microscopy employed to view abnormalities in epon-embedded tissue specimen

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12243 Microscopy epon embedded tissue abnormality type

Type of microscopy employed to view abnormalities in epon-embedded tissue specimen

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19657 Family history birth year text

Free-text field to indicate the year of birth of the participant/subject's relative with the family history of a specific condition

Supplemental Family History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19763 Medical history cataracts diagnosis indicator

Indicator of history of cataracts

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18716 Imaging scanner manufacturer name other text

The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19055 EEG duration other text

The free-text field related to 'EEG duration' specifying other text. The length of time for the Electroencephalography (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 101 - 125 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.