CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 801 - 825 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19906 Basophilic fibers presence status

Presence of basophilic fibers

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12492 Imaging brainstem normality status

Status related to whether the brainstem appears normal or abnormal in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12268 Immunohistochemical stain used muscle biopsy and autopsy type

Which immunohistochemical stains were used on muscle biopsy?

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Muscle Imaging Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10814 Parents biologically related indicator

The indicator whether the subject's/participant's parents are biologically related

Supplemental Family History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17436 EEG short form note text

Notes to Electroencephalography (EEG) reviewers

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12693 Electrophysiology H-reflex nerve segment name

The nerve segment used for the H-reflex test

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12247 Biopsy and Autopsy tissue collection method type

The type of method used for collection of the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12500 Imaging corpus callosum change status

Status related to changes in the corpus callosum observed in the imaging study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12524 Inflammation severity status

Severity of Inflammation muscle diagnostic abnormalities

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19686 Imaging muscle MRI ultrasound pattern indicator

Indicator for pattern seen in muscle MRI or ultrasound performed

Supplemental Muscle Imaging Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C20325 Biopsy and autopsy inflammation description type

The descriptions as related to perivascular inflammation is focused around blood vessels, whereas diffuse inflammation also spreads across the muscle tissue. Inflammatory cells identified include lymphocytes, neutrophils, macrophages, and eosinophils. At times, microorganisms can be identified and should be mentioned

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19663 Family history relationship type

Field where participant/subject can indicate which family member(s) has a history of the listed conditions

Supplemental Family History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12703 Electrophysiology sensory nerve segment length measurement

The sensory nerve segment length measured during the sensory nerve conduction study

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12292 Tissue specimen Langerhans cell process result type

Result for the number of Burden of Langerhans cell processes in the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17402 Site name

The name of the site for the study

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17901 Elevated creatine kinase Indicator

Indicator of whether participant/subject experienced elevated creatine kinase levels

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Prenatal and Perinatal History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12232 Laboratory director name

Name of laboratory director where assessment was performed

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12231 Laboratory name

Name of laboratory where assessment was performed

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

Supplemental Social Status Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18714 Imaging radio frequency coil channel count other text

The free-text field related to 'Imaging radio frequency coil channel count', specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 801 - 825 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.