CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19987 Immunohistochemistry CD68 presence status

The status of the presence of CD68 in immunohistochemistry

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C11099 Pulmonary function test type

Type of pulmonary function testing performed

Supplemental Pulmonary Function Testing Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19947 Biopsy and autopsy muscle spindle status

The status of the presence of muscle spindles

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19859 Medical history joint dislocation since last visit indicator

Indicator of joint dislocations since last study visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12772 Electrophysiology long exercise test post-exercise compound muscle action potential measurement

Compound muscle action potential (CMAP) measurement recorded post- long exercise

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12729 Needle electromyography spontaneous activity type

The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12517 Fatty replacement severity status

Severity of the Fatty replacement muscle diagnostic abnormalities

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12607 Education level maternal USA type

Indicator of the highest level of education completed by the participant/subject's mother

Supplemental Social Status Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19780 Medical history asthma pulmonary medication taken indicator

Indicator of steroid pills or liquid medication taken for asthma

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19994 Immunohistochemistry alphaB crystallin aggregate level status

Level of aB crystallin aggregate

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10780 Electrophysiology anatomic site

Area of the body (e.g., nerve or muscle) where the type of electrophysiology study is performed

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00032 Race USA paternal category

Race(s) the participant/subject's father most closely identifies with

Supplemental Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12372 Respiratory support device model name

Name of the model of the respiratory support or assisted ventilation device

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12332 Respiratory manual percussion use frequency

Frequency of use of manual percussion therapy

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12527 Biopsy and autopsy type 2 predominance fiber percentage value

Percentage of Type 2 predominance fiber present

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19788 Medical history pulmonary ventilator use frequency

Frequency of use of ventilator

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12226 Specimen source type

Type of specimen collection source

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12698 Electrophysiology motor nerve segment length measurement

The nerve segment length measured during the motor nerve conduction study

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12382 Respiratory tracheostomy tube brand style name

Name of the brand/style of the invasive tracheostomy device used by the participant/subject

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12503 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity indicator

Indicator of whether there is grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12340 Respiratory lung volume recruitment daily frequency

Frequency of daily use of the lung volume recruitment

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12295 Laboratory pathology normal range age match indicator

Indicator of whether the pathology laboratory's normal range of intraepidermal nerve fiber density is age-matched to the patient from whom the tissue specimen was taken

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 326 - 350 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.