CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12710 Electrophysiology assessment date and time

Date the particular electrophysiology study was performed

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12394 Respiratory tidal volume measurement

Measurement of the tidal volume of the support ventilation device

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19977 Immunohistochemistry CD4 presence status

The status of the presence of CD4 in immunohistochemistry

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19739 Goniometry shoulder measurement

Measurement in degrees of the passive range of motion for shoulder abduction

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12354 Respiratory intrapulmonary percussive ventilation or MetaNeb frequency

Frequency of intrapulmonary percussive ventilation or MetaNeb use

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12477 Imaging other incidental finding type

Type of other incidental findings found in the imaging study

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10869 Dynamometry hand held muscle test result

The results of the trial performed by the participant/subject on the hand held dynamometer

 Supplemental Hand Held Dynamometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

 Supplemental Grip Strength Fatigue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19899 Elevated C reactive protein value

The elevated C-reactive protein value

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19811 Medical history abdominal liver problem indicator

Indicator of history of liver problem

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12283 Tissue abnormality mitochondria type

Type of any mitochondrial abnormality observed in the epon-embedded tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12254 Biopsy and autopsy myopathy-associated pathological structures type

The type of myopathy-associated pathological structures seen in the histology of the biopsy or autopsy specimen

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00205 Family income range

Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member

 Supplemental Social Status False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19770 Medical history pulmonary aspiration swallowing assessment indicator

Indicator of swallowing studies completed

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18856 Imaging ventricle abnormality other text

The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12362 Respiratory other airway clearance method session time

Time it takes per session for the participant/subject to use the other airway clearance method

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12485 Imaging other cortical abnormality indicator

Indicator of whether other cortical abnormalities of the brain are present

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12322 Respiratory mechanical in-exsufflator inhale pressure value

Value of the inhale pressure setting for the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19907 Hypertrophic fibers presence status

Presence of hypertrophic fiber

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19819 Medical history musculoskeletal joint dislocation indicator

Indicator of joint dislocation

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12269 Biopsy and autopsy immunohistochemical immunofluorescence assays performed

List of stains used

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12605 Caregiver primary type

Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject

 Supplemental Social Status False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19778 Medical history wheezing pulmonary nebulizer use frequency

Frequency of nebulizer use in relation to wheezing

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10777 Electrophysiology study type

Type of electrophysiology study conducted

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 276 - 300 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.