CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 1051

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1856-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C10744	C10744	Echocardiogram left ventricle fractional shortening measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the left ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = LV End Diastolic Dimension and ESD = LV End Systolic Dimension	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1857-C12837	C12837	Cardiac MRI ventricle systolic function result status	Status of the result of the cardiac magnetic resonance imaging (MRI) evaluation of the selected ventricle's systolic function	Exploratory	Cardiac Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C10583	C10583	Imaging base resolution value	Value in points of the base resolution used in imaging acquisition as part of Diffusion Tensor Imaging (DTI)	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1855-C12181	C12181	Dual X-ray absorptiometry lumbar spine T score	Dual X-ray absorptiometry (DEXA) Lspine T score result value	Exploratory	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12865	C12865	Echocardiogram left atrial volume measurement	Measurement of the left atrial volume obtained by echocardiography	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1857-C12846	C12846	Cardiac MRI left ventricle posterior wall thickness measurement	Measurement of the thickness of the posterior wall of the left ventricle as obtained by cardiac magnetic resonance imaging (MRI)	Exploratory	Cardiac Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C10592	C10592	Imaging flow compensation indicator	Indicator of whether flow compensation was used in imaging acquisition	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1855-C12189	C12189	Dual X-ray absorptiometry whole body total lean value	Percentage of lean whole body mass. Dual X-ray absorptiometry (DEXA)	Exploratory	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12873	C12873	Echocardiogram tricuspid valve stenosis degree status	Status of the degree of tricuspid valve stenosis as assessed by echocardiography	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1857-C12855	C12855	Cardiac MRI myocardial scar result status	Status of the result of evaluation of the cardiac magnetic resonance imaging (MRI) for my ocardial scarring on the selected ventricle	Exploratory	Cardiac Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C10691	C10691	Imaging spatially registered template indicator	Indicator as to whether or not imaging is spatially registered to a template for data analysis	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1855-C12197	C12197	Dual X-ray absorptiometry left leg lean value	Left leg lean muscle mass for dual X-ray absorptiometry (DEXA)	Exploratory	Dual-Energy X-Ray Absorptiometry (DEXA)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12881	C12881	Echocardiogram tissue doppler isovolumic contraction time	Isovolumetric contraction measured using tissue doppler. Isovolumetric contraction is a term used in cardiac physiology to refer to an event occurring in early systole, during which the ventricles contract with no corresponding volume change. Record the time it takes for the contraction to occur	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1857-C17928	C17928	Cardiac MRI myocardial scar anatomic site	Anatomic site where myocardial scar was/was not detected	Exploratory	Cardiac Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C17798	C17798	Imaging contrast agent name	Name of imaging contrast agent used	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1856-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Exploratory	Diffusion Tensor Imaging (DTI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12889	C12889	Echocardiogram right ventricle fractional shortening measurement	Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C18849	C18849	Respiratory support negative pressure device delivery method other text	The free-text field related to 'Respiratory support negative pressure device delivery method type' specifying other text. Type of non-invasive, negative pressure delivery method supported by the device	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C00033	C00033	Race USA maternal category	Race(s) the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C12350	C12350	Respiratory high frequency chest wall oscillation system use daily frequency	Frequency with which the participant/subject uses the high frequency chest wall oscillation system device on a daily basis	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1912-C10854	C10854	Grip device width setting value	Value of the width setting on the grip device used to test the participant/subject's grip strength	Supplemental	Grip Strength Fatigue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19874	C19874	Medical history scoliosis development since last visit indicator	Indicator of scoliosis development since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1020-C10171	C10171	Trial number	The number representing the sequence for any repeated measure test or assessment when it is performed multiple times	Supplemental	Hand Held Dynamometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1877-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Prenatal and Perinatal History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

Displaying 201 - 225 of 1051

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.