CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 676 - 700 of 1051
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12333 Respiratory manual percussion use daily frequency

Frequency of use of manual percussion therapy on a daily basis

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19910 Biopsy and autopsy trichome red inclusions status

Red inclusions on trichome status

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

Supplemental Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12232 Laboratory director name

Name of laboratory director where assessment was performed

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12518 Endomysial fibrosis severity status

Severity of the Endomysial fibrosis muscle diagnostic abnormalities

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19866 Medical history speech therapy since last visit indicator

Indicator of change in speech therapy since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C14551 EEG behavioral state recorded type

The recorded state(s) of the subject during the electroencephalogram (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19681 Imaging MRI muscle level of involvement status

The level of involvement status for the muscle tested on the muscle MRI

Supplemental Muscle Imaging Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19995 Immunohistochemistry ubiquitin aggregate level status

Level of ubiquitin aggregate

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12699 Electrophysiology motor nerve amplitude measurement

The measured amplitude of signal response to test stimulation during the motor nerve conduction study

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12736 Needle electromyography motor unit action potential activation type

The activation of the motor unit action potential measure during needle electromyography

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12383 Respiratory tracheostomy tube size measurement

Measurement of the size of the tracheostomy tube

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12504 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site

Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12341 Respiratory lung volume recruitment session time

Time of lung volume recruitment use per session

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12288 Tissue specimen section microscopy type

Type of microscopy used to view the sections taken from the tissue specimen

Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12528 Biopsy and autopsy nemaline rods restricted to one fiber text

Nemaline rods restricted to one fiber text

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19874 Medical history scoliosis development since last visit indicator

Indicator of scoliosis development since last visit

Supplemental Interval Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17427 EEG data type

The data type of the Electroencephalography (EEG)

Supplemental Short Scalp Electroencephalography (EEG) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Prenatal and Perinatal History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

Supplemental Peripheral Nerves - Biopsies and Autopsies Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12227 Postmortem interval for autopsy specimen value

Interval in hours of time elapsed between death and the autopsy at which the tissue specimen was collected

Supplemental Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19835 Pain indicator

Indicator of pain present

Supplemental Intake Medical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12744 Electrophysiology neuromuscular jitter mean consecutive difference abnormal count

Count of pairs/endplates with abnormal mean consecutive difference (MCD) recorded for the neuromuscular jitter study being described

Supplemental Electrophysiology Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12391 Respiratory assessment type

Type of respiratory assessment. Whether the participant/subject is asleep or awake during the assessment

Supplemental Respiratory Interventions Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18610 Imaging in plane resolution axis 2 measurement

Axis 2 of in-plane spatial resolution used in imaging acquisition

Supplemental Brain Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 676 - 700 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.