CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 451 - 475 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00215 Living with person relationship type

Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays

 Supplemental Social Status False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19774 Medical history snoring presence indicator

Indicator of snoring

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18860 Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site other text

The free-text field related to 'Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site', specifying other text. Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 Supplemental General Core False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12366 Respiratory airway clearance medication dose value

Value of the dose of the airway clearance medication used

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12489 Imaging subcortical cysts site type

The anatomical site(s) of the subcortical cysts

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12326 Respiratory mechanical in-exsufflator pause duration

Value of the pause time setting for the mechanical in-exsufflator

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19911 Biopsy and autopsy trichome red inclusions estimated percentage count

Red inclusions on trichome estimated percentage value

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19824 Medical history musculoskeletal scoliosis diagnosis indicator

Indicator of scoliosis

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12233 Preservation technique used type

Type of preservation technique used to preserve the specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12519 Myofiber degeneration severity status

Severity of the Myofiber degeneration muscle diagnostic abnormalities

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

 Supplemental Social Status False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19782 Medical history asthma pulmonary inhalers use frequency

Frequency of use of steroid inhalers used for asthma

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19996 Biopsy and autopsy additional immunohistochemical assays performed text

Specify any additional immunohistochemical/immunoflourescence assays performed

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10783 Electrophysiology motor unit number estimation compound muscle action potential measurement

Measurement in millivolts (mV) of the compound muscle action potential (CMAP) amplitude for the muscle on which MUNE (motor unit number estimation) is performed

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

 Supplemental Prior and Concomitant Medications False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12375 Respiratory positive pressure device initiation date

Date of initiation of the non-invasive, positive pressure device

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12497 Imaging cerebellum abnormality type

The type of abnormality in the cerebellum on the image

 Supplemental Brain Magnetic Resonance Imaging (MRI) False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12334 Respiratory manual percussion session duration

Time of manual percussion use per session

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12289 Tissue specimen section quantify type

Type of quantification used in evaluating the sections taken from the tissue specimen

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12529 Biopsy and autopsy ragged red fibers estimated count

Ragged red fibers estimated number

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19790 Medical history pulmonary current intermittent positive pressure breathing use status

Status of current Intermittent Positive Pressure Breathing (IPPB) use

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19966 Immunohistochemistry delta sarcoglycan status

The status of Delta sarcoglycan in immunohistochemistry

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19878 Meical history anxiety development since last visit indicator

Indicator of anxiety since last study visit

 Supplemental Interval Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 451 - 475 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.