CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00035 Gender type

Self-reported gender of the participant/subject

Core Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

Core Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12671 Surgery lifetime total count

Total number of surgeries the participant/subject has undergone in his/her lifetime

Core Surgical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Core Social Status Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Core Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12890 Echocardiogram left ventricle function status

Status of left ventricle function on the echocardiogram

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12172 Dual X-ray absorptiometry beam technique type

The type of beam technique used for Dual X-ray absorptiometry (DEXA)

Exploratory Dual-Energy X-Ray Absorptiometry (DEXA) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10732 Echocardiogram right ventricular enlargement status

Status of right ventricular enlargement on the echocardiogram

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10745 Echocardiogram early mitral inflow velocity measurement

Measurement of the diastolic pressure difference between the left ventricle and left atrium (E) obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12839 Cardiac MRI ventricle end diastolic dimension measurement

Measurement of the diameter across the selected ventricle at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12866 Echocardiogram left atrial area measurement

Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12847 Cardiac MRI left ventricle mass index measurement

Measurement of the left ventricle mass as obtained by cardiac magnetic resonance imaging (MRI) divided by the participant's body surface area in square meters

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12874 Echocardiogram pulmonic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 1 - 25 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.