CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1050
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12671 Surgery lifetime total count

Total number of surgeries the participant/subject has undergone in his/her lifetime

Core Surgical History Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00035 Gender type

Self-reported gender of the participant/subject.

Core Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02002 Medication prior or concomitant use indicator

Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol

Core Prior and Concomitant Medications Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12229 Tissue specimen size measurement

Measurement of the size of the tissue specimen collected

Core Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00035 Gender type

Self-reported gender of the participant/subject.

Core Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth.

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

Core Muscle Biopsies and Autopsy Tissue Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Core Social Status Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12872 Echocardiogram mitral stenosis degree status

Assessment with echocardiography of whether there is stenosis of the mitral valve of the heart

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12854 Cardiac MRI gadolinum contrast use indicator

Indicator of whether the contrast used for the cardiac MRI was gadolinum-based

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17925 Imaging contrast agent dose

Dosage of the contrast agent used

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12880 Echocardiogram spectral doppler isovolumic contraction time

Isovolumetric contraction time measured using spectral doppler. Isovolumetric contraction is a term used in cardiac physiology to refer to an event occurring in early systole, during which the ventricles contract with no corresponding volume change. Record the time it takes for the contraction to occur.

Exploratory Echocardiogram Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C17927 Cardiac MRI other cardiac anatomy evaluate text

Text of comments regarding the selected other cardiac anatomy evaluated by cardiac MRI

Exploratory Cardiac Magnetic Resonance Imaging (MRI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18708 Imaging pulse sequence other text

The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C10567 Imaging radio frequency coil type

Type of radio frequency (RF) coil(s) used for the body part scanned

Exploratory Diffusion Tensor Imaging (DTI) Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 1 - 25 of 1050

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.