CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 1051

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1903-C19774	C19774	Medical history snoring presence indicator	Indicator of snoring	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19775	C19775	Medical history sleep pulmonary assessment indicator	Indicator of sleep study completed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19776	C19776	Medical history sleep pulmonary assessment date	Date of sleep study completed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19863	C19863	Medical history self feed increase difficulty indicator	Indicator of self-feed difficulty	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19875	C19875	Medical history seizures since last visit indicator	Indicator of seizures since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19854	C19854	Medical history scoliosis surgery since last visit indicator	Indicator of scoliosis surgery since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19874	C19874	Medical history scoliosis development since last visit indicator	Indicator of scoliosis development since last visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1904-C19861	C19861	Medical history roll in bed unassisted since last visit status	Status of assistance needed to roll over in bed since last study visit	Supplemental	Interval Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19764	C19764	Medical history retinal detachment diagnosis indicator	Indicator of history of retinal detachment	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19787	C19787	Medical history pulmonary ventilator use indicator	Indicator of ventilator used	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19788	C19788	Medical history pulmonary ventilator use frequency	Frequency of use of ventilator	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19772	C19772	Medical history pulmonary function test assessment indicator	Indicator of pulmonary function tests completed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19773	C19773	Medical history pulmonary function test assessment date	Date of pulmonary function test completed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19768	C19768	Medical history pulmonary difficulty ingestion relatedness indicator	Indicator of difficulty breathing relation to meal times	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19767	C19767	Medical history pulmonary difficulty diagnosis indicator	Indicator of difficulty breathing	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19790	C19790	Medical history pulmonary current intermittent positive pressure breathing use status	Status of current Intermittent Positive Pressure Breathing (IPPB) use	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19789	C19789	Medical history pulmonary cough assist status	Status of cough assist	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19785	C19785	Medical history pulmonary bilevel positive airway pressure start date	Date of start of bilevel positive airway pressure	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19783	C19783	Medical history pulmonary bilevel positive airway pressure indicator	Indicator of bilevel positive airway pressure	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19786	C19786	Medical history pulmonary bilevel positive airway pressure hospitalization indicator	Indicator of bilevel positive airway pressure hospitilization	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19784	C19784	Medical history pulmonary bilevel positive airway pressure frequency	Frequency of bilevel positive airway pressure	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19770	C19770	Medical history pulmonary aspiration swallowing assessment indicator	Indicator of swallowing studies completed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19771	C19771	Medical history pulmonary aspiration swallowing assessment completion date	Date of swallowing study completed	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19769	C19769	Medical history pulmonary aspiration diagnosis indicator	Indicator of history of aspiration	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1903-C19791	C19791	Medical history pulmonary antibiotics use frequency	Frequency of antibiotic use	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

Displaying 301 - 325 of 1051

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.