CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Core Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Supplemental Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12230 Tissue specimen collection date and time

Date (and time if applicable and known) when the tissue specimen was collected

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18830 Tissue specimen collection anatomic site other text

The free-text field related to 'Tissue specimen collection anatomic site' specifying other text. Anatomic site from which the tissue specimen was collected

 Supplemental-Highly Recommended Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12285 Tissue specimen collection anatomic site

Anatomic site from which the tissue specimen was collected

 Supplemental-Highly Recommended Skin Biopsies for Qualification of Intraepidermal Nerve Fibers False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12282 Tissue abnormality myelination type

Type of any observed myelination in the epon-embedded tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12281 Tissue abnormality myelin axon decrease status

Status of any observed decrease in the myelinated axon numbers of the epon-embedded tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12283 Tissue abnormality mitochondria type

Type of any mitochondrial abnormality observed in the epon-embedded tissue specimen

 Supplemental Peripheral Nerves - Biopsies and Autopsies False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental Electrophysiology False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19889 Symptom presentation weakness distribution type

Weakness distribution symptoms participant/ subject shows at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19890 Symptom presentation weakness distribution other text

The free-text field to describe other symptoms participant/ subject shows at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19895 Symptom presentation toxin supplement drug exposure text

Exposure to toxins, supplements, and drugs participant/ subject shows at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19891 Symptom presentation other muscle symptoms type

Other muscle symptoms participant/ subject shows at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19892 Symptom presentation eye symptoms type

Eye symptoms participant/ subject shows at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19894 Symptom presentation central nervous system disease text

Central nervous system participant/ subject shows at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19893 Symptom presentation cardiac disease text

Known cardiac disease participant/ subject shows at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C20322 Symptom neuromuscular presentation type

Symptoms of neuromuscular disease in participant/ subject at presentation

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19904 Symptom disease lab data known disease other text

Text of other symptoms, signs, known diseases, and lab data

 Supplemental Muscle Biopsies and Autopsy Tissue False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

 Supplemental Surgical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

 Supplemental Surgical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C12672 Surgical or therapeutic procedure ventilated indicator

Whether the participant/subject was ventilated during the surgical or therapeutic procedure

 Supplemental Surgical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C05105 Surgical or therapeutic procedure end date and time

Date on which the surgical or therapeutic procedure ended

 Supplemental Surgical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C08020 Surgery reason indication type

Reason participant/subject is in need of surgery

 Supplemental Surgical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C18759 Surgery reason indication other text

The free-text field related to 'Surgery reason indication type' specifying other text. Reason participant/subject is in need of surgery

 Supplemental Surgical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 26 - 50 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.