CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C19888	Age biopsy year value	Age (in years) of participant/subject at biopsy	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17900	Age presentation year value	Age (in years) of participant/subject at presentation	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	Short Scalp Electroencephalography (EEG)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C00008	Age value	Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C00724	APGAR five minute score	Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Prenatal and Perinatal History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C12604	APGAR one minute score	Score of a newborn recorded at one minute from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Prenatal and Perinatal History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C00723	APGAR ten minute score	Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness	Supplemental	Prenatal and Perinatal History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Goniometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C19908	Atrophy hypotrophy presence status	The status as related to presence of atrophy/hypotrophy fibers	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C19906	Basophilic fibers presence status	Presence of basophilic fibers	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C19829	Behavioral issues indicator	Indicator of behavioral issues	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C19830	Behavioral issues onset date	Date of onset of behavioral issues	Supplemental	Intake Medical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C12241	Biochemical or genetic test name	Name of the biochemical or genetic test as performed on the specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C12241	Biochemical or genetic test name	Name of the biochemical or genetic test as performed on the specimen	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C12240	Biochemical or genetic test performed indicator	Indicator of whether subsequent biochemical or genetic testing was performed	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C12240	Biochemical or genetic test performed indicator	Indicator of whether subsequent biochemical or genetic testing was performed	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C12242	Biochemical or genetic test result value	Results of the biochemical or genetic test performed on the specimen	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C12242	Biochemical or genetic test result value	Results of the biochemical or genetic test performed on the specimen	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17905	Biopsy and autopsy abnormal storage material text	Text describing biopsy or autopsy material that has been stored abnormally	Supplemental	Peripheral Nerves - Biopsies and Autopsies	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17905	Biopsy and autopsy abnormal storage material text	Text describing biopsy or autopsy material that has been stored abnormally	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C12263	Biopsy and autopsy abnormal storage material type	Excesses of material can be detected in some lipid and glycogen storage diseases, which may be evident on Oil Red O and PAS stains, respectively	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C19946	Biopsy and autopsy abnormal structure text	Specify abnormal structure	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C17903	Biopsy and autopsy abnormalities on immunohistochemistry text	Text regarding abnormalities on immunohistochemistry	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C19996	Biopsy and autopsy additional immunohistochemical assays performed text	Specify any additional immunohistochemical/immunoflourescence assays performed	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
C19949	Biopsy and autopsy additional observation text	The free-text field for recording additional observations about the biopsy or autopsy being performed	Supplemental	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.