CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1832-C19663	C19663	Family history relationship type	Field where participant/subject can indicate which family member(s) has a history of the listed conditions	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19659	C19659	Family history side type	Free-text field to indicate the side of the family in which the participant/subject has a family history of the listed conditions	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19657	C19657	Family history birth year text	Free-text field to indicate the year of birth of the participant/subject's relative with the family history of a specific condition	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19656	C19656	Family history living relative status	Status of life of the participant/subject's relative with the family history of a specific condition	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1832-C19655	C19655	Family history CMD LGMD disorder indicator	Indicator for whether the participant/subject has a family history of CMD to LGMD spectrum disorder	Supplemental	Family History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C19518	C19518	Country of origin name	Name of patient/participant's country of origin	Supplemental	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1905-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Goniometry	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1441-C19056	C19056	EEG data other text	The free-text field related to 'EEG data type' specifying other text. The data type of the Electroencephalography (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1441-C19055	C19055	EEG duration other text	The free-text field related to 'EEG duration' specifying other text. The length of time for the Electroencephalography (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1441-C18966	C18966	EEG activating procedures used other text	The free-text field related to 'EEG activating procedures used type' specifying other text. Type(s) of procedures used to improve the electroencephalogram (EEG) diagnostic yield by inducing or enhancing epileptogenic paroxysms	Supplemental	Short Scalp Electroencephalography (EEG)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1441-C18965	C18965	EEG behavioral state recorded other text	The free-text field related to 'EEG behavioral state recorded type' specifying other text. The recorded state(s) of the subject during the electroencephalogram (EEG)	Supplemental	Short Scalp Electroencephalography (EEG)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C18878	C18878	Echocardiogram result other text	The free-text field related to 'Echocardiogram result status' specifying other text. The global results of the echocardiogram	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C18877	C18877	Echocardiogram right ventricle systolic pressure estimation type other text	The free-text field related to 'Echocardiogram systolic pressure estimation type' specifying other text. Type of technique used to estimate the right ventricular systolic pressure	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1062-C18871	C18871	Needle electromyography spontaneous activity other text	The free-text field related to 'Needle electromyography spontaneous activity type' specifying other text. The type of spontaneous activity (SA) experienced by the participant/subject when undergoing needle electromyography	Supplemental	Electrophysiology	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1833-C18861	C18861	Health insurance private group other text	The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled	Supplemental	Social Status	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18860	C18860	Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site other text	The free-text field related to 'Imaging T2 fluid attenuated inversion recovery gray matter hyperintensity anatomic site', specifying other text. Anatomic site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18859	C18859	Imaging cerebellum abnormality other text	The free-text field related to 'Imaging cerebellum abnormality type' specifying other text. The type of abnormality in the cerebellum on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18858	C18858	Imaging pons abnormality other text	The free-text field related to 'Imaging pons abnormality type' specifying other text. The type of abnormality in the pons on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18857	C18857	Imaging brainstem abnormality other text	The free-text field related to 'Imaging brainstem abnormality type' specifying other text. The type of abnormality in the brainstem on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18856	C18856	Imaging ventricle abnormality other text	The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18855	C18855	Imaging other cortical abnormality other text	The free-text field related to 'Imaging other cortical abnormality type' specifying other text. The type of other cortical abnormality	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1057-C18854	C18854	Imaging other incidental finding other text	The free-text field related to 'Imaging other incidental finding type' specifying other text. The type of other incidental findings found within the image studies	Supplemental	Brain Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1038-C18853	C18853	Pulmonary gas exchange assessment performed other text	The free-text field related to 'Pulmonary gas exchange assessment performed location' specifying other text. The location where the gas exchange assessment was performed	Supplemental	Measures of Gas Exchange	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1038-C18852	C18852	Respiratory oxygen administration method other text	The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used	Supplemental	Measures of Gas Exchange	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1037-C18852	C18852	Respiratory oxygen administration method other text	The free-text field related to 'Respiratory oxygen administration method name' specifying other text. Name of method of administration of supplemental oxygen used	Supplemental	Respiratory Interventions	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.