CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 1051
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19761 Medical history glaucoma diagnosis indicator

Indicator of history of Glaucoma

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19760 Medical history strabismus diagnosis indicator

Indicator of medical history of strabismus

 Supplemental Intake Medical History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19748 Goniometry torso measurement

Measurement in degrees of the passive range of motion for torso

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19747 Goniometry ankle measurement

Measurement in degrees of the passive range of motion for ankle

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19746 Goniometry knee measurement

Measurement in degrees of the passive range of motion for knee

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19745 Goniometry hip measurement

Measurement in degrees of the passive range of motion for hip

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19744 Goniometry neck measurement

Measurement in degrees of the passive range of motion for neck

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19743 Goniometry toe measurement

Measurement in degrees of the passive range of motion for toes

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19742 Goniometry finger measurement

Measurement in degrees of the passive range of motion for fingers

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19741 Goniometry wrist measurement

Measurement in degrees of the passive range of motion for wrist

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19740 Goniometry elbow measurement

Measurement in degrees of the passive range of motion for elbow

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19739 Goniometry shoulder measurement

Measurement in degrees of the passive range of motion for shoulder abduction

 Supplemental Goniometry False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19736 Respiration intervention invasive tracheostomy tube indicator

Indicator of invasive respiratory support including a tracheostomy tube

 Supplemental Respiratory Interventions False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19732 Birth muscle tone level status

Muscle tone at time mother birthed to the participant/subject

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19731 Birth respiratory status

Respiratory status at time mother birthed to the participant/subject

 Supplemental Prenatal and Perinatal History False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19702 Imaging muscle MRI ultrasound pattern congenital muscular disease not consistent text

The free-text field related to pattern identified not being consistent with a pattern described in a CMD subtype and 'Pattern Consistent with CMD Subtype Indicator'

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19701 Imaging muscle MRI ultrasound pattern congenital muscular disease consistent indicator

Indicator of the pattern identified is consistent with a pattern described in a CMD subtype

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19686 Imaging muscle MRI ultrasound pattern indicator

Indicator for pattern seen in muscle MRI or ultrasound performed

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19685 Imaging MRI ultrasound location text

Location of Muscle MRI or Ultrasound performed

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19684 Imaging calf muscle location anatomic site

The name of the calf muscles that were tested

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19683 Imaging ultrasound muscle pattern type

The type of muscle pattern displayed on the ultrasound

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19682 Imaging ultrasound muscle level of involvement status

The level of involvement status for the muscle tested on the ultrasound

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19681 Imaging MRI muscle level of involvement status

The level of involvement status for the muscle tested on the muscle MRI

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19680 Imaging thigh muscle anatomic site

The name of the thigh muscles that were tested

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
C19679 Imaging muscle MRI ultrasound performed type

Type of muscle magnetic resonance imaging or ultrasound performed

 Supplemental Muscle Imaging False Congenital Muscular Dystrophy Congenital Muscular Dystrophy (CMD)
Displaying 251 - 275 of 1051

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.