CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C12875	C12875	Echocardiogram mitral valve prolapse indicator	Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C19831	C19831	Psychiatric anxiety indicator	Indicator of anxiety	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C19877	C19877	Medical history depression since last visit indicator	Indicator of depression since last study visit	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C21870	C21870	Medical history Lyme disease indicator	The indicator related to personal medical history of Lyme disease	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C21887	C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22399	C22399	Spina bifida diagnosis indicator	The indicator related to diagnosis of spina bifida	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22400	C22400	Spina bifida occulta diagnosis indicator	The indicator related to spina bifida in which there is a defect in the bony spinal canal without protrusion of the cord or meninges	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22401	C22401	Spina bifida myelomeningocele diagnosis indicator	The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22402	C22402	Hereditary disorder connective tissue diagnosis indicator	The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22403	C22403	Cutaneous stigmata occult tethered spinal cord hair tuft indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for hair tuft	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22404	C22404	Cutaneous stigmata occult tethered spinal cord dimple indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for skin dimple	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22405	C22405	Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22406	C22406	Cutaneous stigmata occult tethered spinal cord lipoma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22407	C22407	Cutaneous stigmata occult thread spinal cord appendage indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22408	C22408	Cutaneous stigmata occult tethered spinal cord meningocele manque indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22409	C22409	Skin abnormality stretch mark indicator	The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22410	C22410	Skin abnormality hyperextensiblilty indicator	The indicator related to evaluation of the presence of skin abnormality of hyperextensiblilty consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22411	C22411	Skin abnormality peizogenic papule indicator	The indicator related to evaluation of the presence of skin abnormality of peizogenic papule consistent with connective tissue disorders	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22412	C22412	Arachnodactyly presence indicator	The indicator for arachnodactyly ("spider fingers") or achromachia is a condition in which the fingers and toes are abnormally long and slender, in comparison to the palm of the hand and arch of the foot	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22413	C22413	Pneumothorax hernia organ prolapse indicator	The indicator related to any clinical history of pneumothorax, hernias, or organ prolapse	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22414	C22414	Osteoporosis osteopenia diagnosis indicator	The indicator relating to the diagnosis of osteoporosis and/or osteopenia based on DEXA measurement	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22415	C22415	Chiari malformation family history indicator	The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22416	C22416	Birth delivery normal indicator	The indicator related to birth presentation at delivery being normal	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.