CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 861

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2141-C21694	C21694	Chiari I malformation unsteady stand walk symptom indicator	The indicator related to feelings of unsteadiness when standing or walking in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21695	C21695	Chiari I malformation headache pressure eye ear light sensitive symptom indicator	The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21696	C21696	Chiari I malformation headache strain activity worsen symptom indicator	The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation	Supplemental-Highly Recommended	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21697	C21697	Chiari I malformation chronic fatigue short-term memory loss irritable symptom indicator	The indicator related to complaints of chronic fatigue, short-term memory loss or irritability in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21698	C21698	Chiari I malformation generalize weakness stiff arm leg symptom indicator	The indicator related to generalized weakness/stiffness of your arms and legs in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21699	C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2142-C21700	C21700	Coordination gait assessment scale	The scale related to assessment of manner of person's walking	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21701	C21701	Coordination gait tandem assessment scale	The scale related to assessment of manner of person's walking where toes of the back foot touch the heel of the front foot at each step	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21702	C21702	Coordination stance assessment scale	The scale related to assessment of way someone stands	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21703	C21703	Coordination Romberg maintain stance eye close assessment scale	The scale related to assessment of Romberg's test of neurological function of maintaining way of standing with eyes closed	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21704	C21704	Coordination finger to nose right upper extremity assessment scale	The scale related to assessment of the motion finger to nose right (upper extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21705	C21705	Coordination finger to nose right upper extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (right upper extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21706	C21706	Coordination finger to nose left upper extremity assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21707	C21707	Coordination finger to nose left upper extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21708	C21708	Coordination heel to shin right lower extremity assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (right lower extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21709	C21709	Coordination heel to shin right lower extremity tap assessment scale	The scale related to assessment of completing the motion of heel to shin (right lower extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21710	C21710	Coordination heel to shin left lower extremity assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21711	C21711	Coordination heel to shin left lower extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower level extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2142-C21712	C21712	Coordination total assessment score	Total score of the Coordination assessment scale	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2143-C21726	C21726	Karnofsky modified performance status score	Score identifying current level of functioning favoring the highest level estimate	Supplemental	Functional Status Karnofsky Score	False	Chiari I Malformation	Chiari I Malformation
F2144-C21727	C21727	Lansky modified performance status score	Score that best identifies your child's current level of functioning favoring the highest level estimate	Supplemental	Functional Status Lansky Score	False	Chiari I Malformation	Chiari I Malformation
F2145-C01507	C01507	Blood pressure diastolic measurement	Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.