CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 226 - 250 of 855

« first
‹ previous
…
6
7
8
9
10
11
12
13
14
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2193-C55653	C55653	Head shake thrust status	The status related to head shake/thrust	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2152-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22309	C22309	Chiari malformation numbness tingling onset important symptom scale	The scale as related to numbness/tingling at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2156-C22724	C22724	Speech difficulty indicator	Indicator of whether the patient/participant has difficulty with speech	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C21876	C21876	Surgical history pacemaker indicator	The indicator related to surgical history of a pacemaker	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2172-C21749	C21749	Imaging posterior cranial fossa superior posterior fossa length measurement	The measurement as related to distance from dorsum sella to internal occipital protuberance	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22545	C22545	Shunt valve scan date	Date of shunt valve scan	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2140-C21716	C21716	Tongue function atrophy assessment status	Status as related to tongue function atrophy	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F0016-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2156-C22772	C22772	Precipitating cause test type	Type of test(s) performed to identify the precipitating cause of the neurological disorder	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2194-C55661	C55661	Cervical compression surgical site tenderness anatomic site	The anatomic site related to cervical compression at surgical site	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2152-C22710	C22710	Medication prior or concomitant dose frequency other text	The free-text field related to 'Medication prior or concomitant dose frequency' specifying other text. Dosing frequency for the administration of the prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22328	C22328	Chiari malformation headache onset symptom severity scale	The scale as related to headache at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2159-C22266	C22266	Spine range of motion trunk forward flexion estimate degree value	The value in degrees related to range in motion of trunk forward flexion (100) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F0016-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2157-C22227	C22227	Sensory abnormal burning pain indicator	The indicator related to abnormal burning pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2153-C22031	C22031	Motor strength testing right triceps scale	The amount of movement in the right triceps muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22347	C22347	Chiari malformation cardiac onset symptom severity scale	The scale as related to cardiac at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2156-C22740	C22740	Urination urge control difficulty indicator	Indicator of whether the patient/participant has experienced difficulty controlling the urge to urinate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2150-C21925	C21925	Balance falls frequency	The frequency as related to falls	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2182-C11063	C11063	Parity maternal value	Number of live born children the participant's/subject's mother has delivered	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2160-C22238	C22238	Headache associate symptom type	The type related to the associated symptoms that the subject is experiencing during his/her headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2165-C22301	C22301	Reflex pyramidal frontal release sign snout status	The response status as related to pyramidal/frontal release sign snout reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22748	C22748	Occasional bowel incontinence current indicator	Indicator of whether the patient/participant currently experiences occasional bowel incontinence	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22569	C22569	Surgical procedure complication infection indicator	Indicator relating to the complication of infection	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

Displaying 226 - 250 of 855

« first
‹ previous
…
6
7
8
9
10
11
12
13
14
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.