CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2155-C22364	C22364	Reflex autonomic reflex RR interval response variation status	The response status as related to autonomic reflexes RR interval response variation status	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2160-C22230	C22230	Headache duration	The duration of the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2190-C22372	C22372	Imaging pre surgical procedure date	Date of pre-surgical imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2154-C22202	C22202	Chiari malformation neurological examination gag reflex bilateral present indicator	The indicator related to gag reflex being present bilaterally	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2141-C21690	C21690	Chiari I malformation headache pressure daily occurrence indicator	Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2161-C22239	C22239	Surgical procedure wound healing status	The status related to wound healing after surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22395	C22395	Cerebrospinal fluid dorsal space measurement	Measurement related to the minimal cerebrospinal fluid (CSF) space dorsal to the tonsils at the craniomandibular joint (CMJ)	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2154-C22214	C22214	Chiari malformation neurological examination abdominal reflex present indicator	The indicator related to abdominal reflexes being present	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2158-C22510	C22510	Shunt valve present indicator	Valve present	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2190-C22574	C22574	Surgical procedure complication mechanic displacement type	Type of mechanical displacement the subject has, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2163-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22517	C22517	Syrinx length change measurement	Measurement of the change in the longitudinal length of the patient's spinal syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22213	C22213	Reflex deep tendon reflex jaw response score	The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Chiari I Malformation	Chiari I Malformation
F2158-C22532	C22532	Shunt valve removal date	Date shunt valve was removed	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22044	C22044	Motor strength testing atrophy indicator	The indicator relating to atrophy in a muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2142-C21706	C21706	Coordination finger to nose left upper extremity assessment scale	The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2163-C22295	C22295	Chiari malformation precipitate factor type	The type related to any precipitating factors that may have contributed to the patient's Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22528	C22528	Surgical procedure complication cerebrospinal fluid disorder indicator	Indicator related to the complication of a cerebrospinal fluid (CSF) disorder	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22272	C22272	Reflex deep tendon reflex achilles response score	The response score related to deep tendon reflex testing of achilles (tibial:s1)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21746	C21746	Imaging posterior cranial fossa clivus length measurement	The measurement as related to distance from dorsum sella to basion on midsagittal MRI	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2153-C22052	C22052	Motor strength testing left ehl scale	The amount of movement in the left EHL	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2146-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2152-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation

Displaying 201 - 225 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.