CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22390	C22390	Imaging post surgical procedure anatomical site	Anatomical site of the post operative imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21833	C21833	Headache symptom association type	The type as related to symptoms consistently associated with headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22207	C22207	Chiari malformation neurological examination tandem standing walking not difficult indicator	The indicator related to not having difficulty with tandem standing and walking	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2146-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22034	C22034	Motor strength testing right wrist extension scale	The amount of movement in the extension of the right wrist muscles	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56973	C56973	Muscle spasm tenderness type	Type of muscle spasm tenderness	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22743	C22743	Inability empty bladder single attempt indicator	Indicator of whether the patient/participant is unable to empty his or her bladder in a single urination attempt	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22442	C22442	Medical history correction high arched palate abnormality indicator	The indicator related to medical history of or correction of an abnormality in the subject's high arched palate	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2142-C21711	C21711	Coordination heel to shin left lower extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower level extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2150-C21944	C21944	Dizziness motion related duration type	The duration as related to the motion related dizziness	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2164-C22369	C22369	Chiari malformation tethered spinal cord frequent urinate indicator	Indicator related to frequency of urination	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C21771	C21771	Chiari malformation screening wound prolong heal separation indicator	The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22487	C22487	Obex plug indicator	The indicator related to the plugging of the obex	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56981	C56981	Range of motion at hip result type	The result and findings from the participant/subject's range of motion at his/her hips	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22751	C22751	Crohns disease colitis diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with Crohn's disease or colitis	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2151-C22099	C22099	Modified Ashworth Scale - Limb tone testing left elbow scale	The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22382	C22382	Chiari malformation tethered spinal cord decrease pelvic sensation indicator	The indicator related to a decrease of sensation in the pelvic region	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22711	C22711	Pain pressure behind eyes indicator	Indicator of whether the patient/participant feels pressure or pain behind his or her eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21715	C21715	Tongue function deviation assessment status	Status as related to tongue function deviation	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C18150	C18150	Thyroid disease indicator	Indicator for thyroid disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22495	C22495	Surgical procedure syrinx performed type	The type of direct surgical treatment of syrinx (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56989	C56989	Heel walking type	Type of heel walking	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation

Displaying 151 - 175 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.