CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 855

« first
‹ previous
…
2
3
4
5
6
7
8
9
10
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2194-C56990	C56990	Heel walking weakness type	Type of heel walking weakness	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21777	C21777	Abdomen soft non tender indicator	The indicator related to identifying a soft and non tender abdomen	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2154-C22221	C22221	Chiari malformation neurological examination secondary sensory modalities intact indicator	The indicator related to secondary sensory modalities being intact (e.g. limb localization, DSS, graphesthesia)	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22499	C22499	Hydrocephalus diagnosis required intervention six month indicator	The indicator related to required intervention on a Hydrocephalus diagnosed six months post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22042	C22042	Motor strength testing intrinsic left hand scale	The amount of movement in the intrinsic muscles of the left hand	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2148-C21788	C21788	Headache quality score	The score related to the quality of the patient's headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2272-C55637	C55637	Neck Disability Index - Personal care indicator	The pain indicator of personal care as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2145-C21795	C21795	TMJ intact indicator	The indicator related to an intact TMJ	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2155-C22264	C22264	Reflex deep tendon reflex patellar response score	The response score related to deep tendon reflex testing of patellar (femoral:l2-4)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2183-C22507	C22507	Spinal deformity stabilization indicator	The indicator related to the surgical stabilization of spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22250	C22250	Reflex deep tendon reflex biceps response score	The response score related to deep tendon reflex testing of biceps (musculocutaneous:c5-6)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2153-C22050	C22050	Motor strength testing left ankle pf scale	The amount of movement in the left ankle pf	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2272-C55645	C55645	Neck Disability Index - recreation indicator	The recreation indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2146-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56966	C56966	Jugular compression type	Type of jugular compression	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22298	C22298	Reflex pyramidal frontal release sign glabellar status	The response status as related to pyramidal/frontal release sign glabellar reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2154-C22183	C22183	Chiari malformation neurological examination funduscopic exam benign indicator	The indicator related to funduscopic exam being benign and discs flat	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22437	C22437	Suboccipital craniectomy size superior inferior measurement	The measurement related to the size of the suboccipital craniectomy superiorly or inferiorly	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2163-C22357	C22357	Chiari malformation identify speciality diagnosis type	The type of specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2146-C21688	C21688	Beighton Score - Motion palm flat leg straight score	Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56974	C56974	Muscle spasm induration type	Type of muscle spasm induration	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22359	C22359	Reflex autonomic reflex lacrimate status	Describe observed response (the secretion of excess tears)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2154-C22199	C22199	Chiari malformation neurological examination tongue palate pharynx intact indicator	The indicator related to tongue, palate and pharynx being intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation

Displaying 126 - 150 of 855

« first
‹ previous
…
2
3
4
5
6
7
8
9
10
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.