CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2145-C21789	C21789	Cutaneous stigma absent indicator	The indicator related to an absence of cutaneous stigma	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22356	C22356	Imaging diagnostic method type other text	The free text field related to the imaging method utilized for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2156-C13523	C13523	Dizziness or vertigo indicator	Indicator of whether the participant/subject experienced dizziness or vertigo	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22437	C22437	Suboccipital craniectomy size superior inferior measurement	The measurement related to the size of the suboccipital craniectomy superiorly or inferiorly	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2182-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22232	C22232	Surgical procedure anatomic site	The anatomic site related to surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21835	C21835	Headache temporal association type	The type as related to time of occurrence of consistent headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22211	C22211	Chiari malformation neurological examination pronator drift absent indicator	The indicator related to not having pronator drift	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2158-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22483	C22483	Chiari decompression verification decompression obex choroid plexus fourth ventricle indicator	The indicator related to the verification of decompression within the obex or the choroid plexus of the 4th ventricle	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2161-C22274	C22274	Surgical procedure type	The type of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56977	C56977	Trigger point type	Type of trigger points	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2154-C22221	C22221	Chiari malformation neurological examination secondary sensory modalities intact indicator	The indicator related to secondary sensory modalities being intact (e.g. limb localization, DSS, graphesthesia)	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21736	C21736	Imaging syrinx width measurement	Greatest transverse diameter of hydrosyringomyelia on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22529	C22529	Shunt valve surgical implantation date	Date of surgical implantation	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C21685	C21685	Beighton Score - Motion finger bend back score	Score/Assessment of Motion to bend finger back as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22042	C22042	Motor strength testing intrinsic left hand scale	The amount of movement in the intrinsic muscles of the left hand	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22491	C22491	Cranioplasty cerebelloplasty performed type	The type of cranioplasty/cerebelloplasty (if any) performed	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2163-C22290	C22290	Chiari malformation information source	The source that provided information about Chiari Malformation to the patient	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2194-C56985	C56985	Stair climbing difficulty type	The difficulty the participant/subject has when climbing stairs	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22264	C22264	Reflex deep tendon reflex patellar response score	The response score related to deep tendon reflex testing of patellar (femoral:l2-4)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22454	C22454	Pseudotumor papilledema family history condition indicator	The indicator related to personal or family history of pseudotumors or papilledema	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2158-C22540	C22540	Shunt valve reservoir resistance type	Resistance to reservoir compression	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation

Displaying 101 - 125 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.