CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 855

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2163-C22357	C22357	Chiari malformation identify speciality diagnosis type	The type of specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2183-C22483	C22483	Chiari decompression verification decompression obex choroid plexus fourth ventricle indicator	The indicator related to the verification of decompression within the obex or the choroid plexus of the 4th ventricle	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56977	C56977	Trigger point type	Type of trigger points	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22747	C22747	Current diarrhea indicator	Indicator of whether the patient/participant currently experiences diarrhea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2151-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22378	C22378	Chiari malformation tethered spinal cord urinate incomplete indicator	The indicator related to incomplete urination	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2149-C05454	C05454	Hypertension indicator	Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2172-C21739	C21739	Imaging posterior cranial fossa pB-C2 measurement	The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22535	C22535	Shunt valve in place indicator	Shunt valve currenting in place	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22045	C22045	Motor strength testing fasciculation indicator	The indicator relating to fasciculations in a muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2148-C21833	C21833	Headache symptom association type	The type as related to symptoms consistently associated with headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2142-C21712	C21712	Coordination total assessment score	Total score of the Coordination assessment scale	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2146-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22302	C22302	Chiari malformation headache onset important symptom scale	The scale as related to headache at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2172-C21747	C21747	Imaging posterior cranial fossa supraoccipital length measurement	The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22543	C22543	Shunt valve functional assessment type	Shunt valve functional assessment type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2154-C22176	C22176	Chiari malformation neurological examination alert orient indicator	The indicator related to patient being alert and oriented to person, place and time	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2140-C21716	C21716	Tongue function atrophy assessment status	Status as related to tongue function atrophy	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2194-C55659	C55659	Cervical posture type	The type as related to cervical posture	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F0016-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2163-C22323	C22323	Chiari malformation cardiac onset important symptom scale	The scale as related to cardiac at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2159-C22263	C22263	Spine range of motion trunk extension degree value	The value in degrees related to range in motion of trunk extension (30) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2154-C22186	C22186	Chiari malformation I neurological examination ptosis absent extraocular muscles intact pupils equal round light reaction indicator	The indicator related to extraocular muscles (EOMs) are intact, intact pupils equal round react light (PERRL), and no ptosis	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21684	C21684	Beighton Score - Motion thumb forearm assessment score	Score/Assessment of the motion thumb to forearm as part of the Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation

Displaying 76 - 100 of 855

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.