CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2149-C21890	C21890	Medical history test sedation require indicator	The indicator relating to the requirement of sedation for testing	Exploratory	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2148-C21842	C21842	Headache aggravating pain factor type	The type as related to factor aggravating headache pain	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2165-C22032	C22032	Motor strength testing left triceps scale	The amount of movement in the left triceps muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56968	C56968	Tinels sign negative side type	The side on which the participant/subject's Tinel's signs read negative	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22436	C22436	Inferior vena caval pressure abnormality indicator	The indicator related to the presence of any abnormality in the value of the subject's inferior vena caval (IVC) pressure	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22040	C22040	Motor strength testing intrinsic right hand scale	The amount of movement in the intrinsic muscles of the right hand	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56976	C56976	Adsons maneuver internal side type	The side on which the participant/subject lost his/her pulse in internal rotation	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22445	C22445	Micrognathia condition indicator	The indicator related to the condition of micrognathia, in which the subject has a small receding jaw	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2155-C22298	C22298	Reflex pyramidal frontal release sign glabellar status	The response status as related to pyramidal/frontal release sign glabellar reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22412	C22412	Arachnodactyly presence indicator	The indicator for arachnodactyly ("spider fingers") or achromachia is a condition in which the fingers and toes are abnormally long and slender, in comparison to the palm of the hand and arch of the foot	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2158-C22542	C22542	Shunt valve manometric pressure type	Provide the shunt value for the manometric pressure	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2182-C22420	C22420	Gestation singleton indicator	The indicator related to a single gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22550	C22550	Symptom general pain post surgical procedure score	Score related to the symptom scale of the subject's general pain post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21754	C21754	Imaging spine anomaly tethered cord present indicator	The indicator related to presence of tethered cord on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2159-C22261	C22261	Spine range of motion Lhermitte's sign evoke type	The type of range of motion in which Lhermitte's sign was evoked in the patient's spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56961	C56961	Straight leg raising pain type	The participant/subject's capability of straight leg raising	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22428	C22428	Material infection condition indicator	The indicator related to the condition of a maternal infection developing during pregnancy	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22558	C22558	Symptom cranial nerve pre surgical procedure score	Score related to the symptom scale of the subject's cranial nerves pre surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2140-C21719	C21719	Sixth cranial nerve palsy assessment status	Status as related to assessment of 6th cranial nerve palsy	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2190-C22566	C22566	Symptom depression surgical procedure change score	Score related to the change in the subject's depression scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2141-C21691	C21691	Chiari I malformation neck pain stiff radiate shoulder symptom indicator	The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2141-C21699	C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2172-C21738	C21738	Imaging posterior cranial fossa bone clivo-axial angle (CXA) measurement	The measurement as related to bone clivo-axial angle (CXA)	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2165-C22051	C22051	Motor strength testing right ehl scale	The amount of movement in the right ehl	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2148-C21782	C21782	Headache primary laterality anatomic site score	The score relating to the anatomic site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.