CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2190-C22373	C22373	Imaging pre surgical procedure type	Type of pre-surgical imaging	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2140-C21723	C21723	Coordination truncal instability assessment indicator	Indicator related to truncal instability or with a wide-based "drunken sailor" gait	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22460	C22460	Suboccipital craniectomy size left right measurement range	The range of measurement related to the size of the suboccipital craniectomy left or right	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56970	C56970	Muscle spasm type	Type of muscle spasm	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22358	C22358	Chiari malformation identify specialty diagnosis type text	The free text field related to identifying the specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2154-C22217	C22217	Chiari malformation neurological examination coordination rapid alternating movement intact indicator	The indicator related to coordination and rapid alternating movements being intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2153-C22039	C22039	Motor strength testing right quadricep scale	The amount of movement in the right quadricep	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2183-C22484	C22484	Chiari decompression verification decompression lateral cervicomedullary junction cranial spinal nerve rootlet indicator	The indicator related to the verification of decompression within the lateral cervicomedullary junction/cranial or spinal nerve rootlets	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2164-C22379	C22379	Chiari malformation tethered spinal cord reoccur bladder kidney indicator	The indicator related to recurring urinary bladder or kidney infection	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2155-C22258	C22258	Reflex deep tendon reflex triceps response score	The response score related to deep tendon reflex testing of triceps (radial:c7-8)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2153-C22047	C22047	Motor strength testing right ankle df scale	The amount of movement in the right ankle df	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2142-C21702	C21702	Coordination stance assessment scale	The scale related to assessment of way someone stands	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2183-C22492	C22492	Blood estimate loss measurement	The measurement related to the estimated amount of blood loss	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2138-C21675	C21675	Allergy medication name	Name related to the medication causing allergic reaction	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2194-C56986	C56986	Trigger point trapezius type	Type of trapezius trigger point	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22455	C22455	Family history cranial synostosis condition type	The type related to personal or family history of the condition of cranial synostosis	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22387	C22387	Chiari malformation tethered spinal cord sole numbness indicator	The indicator related to numbness in the soles of an individual's feet	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2155-C22289	C22289	Reflex superficial reflex plantar response status	The response status of superficial reflex testing of plantar (tibial: S1)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2154-C22180	C22180	Chiari malformation neurological examination normal mood indicator	The indicator related to mood and affect being normal	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2142-C21710	C21710	Coordination heel to shin left lower extremity assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2183-C22500	C22500	Surgical procedure wound revision requirement six month indicator	The indicator related to a surgical wound revision required at 6 months post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C19256	C19256	Study protocol name	Name of study protocol	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2154-C22188	C22188	Chiari malformation neurological examination facial asymmetry weakness absent indicator	The indicator related to not having facial asymmetry or weakness	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22508	C22508	Spinal deformity stabilization text	The free-text field related to the highest/lowest level of surgical stabilization of the spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22258	C22258	Reflex deep tendon reflex triceps response score	The response score related to deep tendon reflex testing of triceps (radial:c7-8)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation

Displaying 51 - 75 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.