CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2149-C05454	C05454	Hypertension indicator	Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22042	C22042	Motor strength testing intrinsic left hand scale	The amount of movement in the intrinsic muscles of the left hand	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22311	C22311	Chiari malformation imbalance dizziness onset important symptom scale	The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2144-C21727	C21727	Lansky modified performance status score	Score that best identifies your child's current level of functioning favoring the highest level estimate	Supplemental	Functional Status Lansky Score	False	Chiari I Malformation	Chiari I Malformation
F2172-C21750	C21750	Imaging posterior cranial fossa tentorial angle measurement	The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tentorium, independent of orientation of occipital bone	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2159-C22255	C22255	Spine range of motion neck right rotation degree value	The value in degrees related to range in motion of neck to the right (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2151-C22103	C22103	Modified Ashworth Scale - Limb tone testing left hip scale	The scale of limb tone testing for the left hip, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22264	C22264	Reflex deep tendon reflex patellar response score	The response score related to deep tendon reflex testing of patellar (femoral:l2-4)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56957	C56957	Cranio-cervical junction axial loading status	The status for cranio-cervical junction axial loading	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2149-C19779	C19779	Medical history asthma pulmonary assessment indicator	Indicator of history of asthma	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22050	C22050	Motor strength testing left ankle pf scale	The amount of movement in the left ankle pf	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22333	C22333	Chiari malformation neck pain onset symptom severity scale	The scale as related to neck pain at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2152-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2149-C21875	C21875	Surgical history cardiac bypass stent indicator	The indicator related to surgical history of cardiac bypass/stent	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22183	C22183	Chiari malformation neurological examination funduscopic exam benign indicator	The indicator related to funduscopic exam being benign and discs flat	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22351	C22351	Chiari malformation bowel bladder onset symptom severity scale	The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2182-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22390	C22390	Imaging post surgical procedure anatomical site	Anatomical site of the post operative imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2141-C21690	C21690	Chiari I malformation headache pressure daily occurrence indicator	Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2165-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2152-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2155-C22359	C22359	Reflex autonomic reflex lacrimate status	Describe observed response (the secretion of excess tears)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2154-C22199	C22199	Chiari malformation neurological examination tongue palate pharynx intact indicator	The indicator related to tongue, palate and pharynx being intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22400	C22400	Spina bifida occulta diagnosis indicator	The indicator related to spina bifida in which there is a defect in the bony spinal canal without protrusion of the cord or meninges	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

Displaying 301 - 325 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.